Medical Health Updates
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Update numbers
#1 Saturday March 16, 2002 ;
#2 Wednesday March 20, 2002 ;
#3 Friday March 22, 2002 ;
#4 Wednesday March 27, 2002 ;
#5 Saturday April 6, 2002 ;
#6 OOPS! There wasn't a #6! ;
#7 Wednesday April 10, 2002 ;
#8 Friday April 12, 2002 ;
#9 Wednesday April 24, 2002 ;
#10 Thursday May 16, 2002 ;
#11 Thursday July 10, 2002 ;
#12 Monday April 28, 2003 ;
#13 Wednesday August 6, 2003 ;
#14 Saturday August 9, 2003 ;
#15 Friday August 15, 2003 ;
#16 Tuesday September 2, 2003 ;
#17 Tuesday October 14, 2003 ;
#18 Thursday October 16, 2003 ;
#19 Thursday October 16, 2003 ;
#20 Tuesday November 25, 2003 ;
#21 Wednesday December 10, 2003 ;
#22 Tuesday December 23, 2003 ;
#23 Thursday February 5, 2004 ;
#24 Tuesday March 23, 2004 ;
#25 Friday April 9, 2004 ;
#26 Sunday April 18, 2004 ;
#27 Thursday April 22, 2004 ;
#28 Friday July 23, 2004 ;
#29 Sunday December 19, 2004 ;
#30 Sunday February 6, 2005 ;
#31 Tuesday March 29, 2005 ;
#32 Sunday April 3, 2005 ;
#33 Monday April 18, 2005 ;
#34 Saturday July 2, 2005 ;
#35 Monday July 4, 2005 ;
Hello to all!
I am sending this message out to family, friends, co-workers and co-volunteers to inform/update you on our current "challenge".
Michael was recently diagnosed with rectal cancer and has undergone surgery to remove the affected part. As so many of you have inquired, I thought providing this information via e-mail might be the quickest way to keep all of you up-to-date and try to answer all the many questions.
It is amazing how many lives are touched by cancer--I met with co-workers at Lakewold Gardens Estate and spoke to nine members of the staff--every single person had been themselves or had a beloved family member who had been directly affected by some form of cancer.
Michaels current situation:
Michael has rectal cancer. The Dr. figures that the tumor began growing in him fifteen years ago--he was "symptom free" until late December when he began the testing process. During the eight hour surgery on Tuesday March 5th, 8.5" of the colon with the 2.5" tumor was removed--a colostomy was not required. Michael experienced "common" complications after the surgery--partial collapse of the lower left lobe of his lung. I stayed with him at St. Clare Hospital in Lakewood and ensured that he did his breathing therapy and frequent walking. We seem to have passed that hurdle and he was released from the hospital on Monday March 11. Michael will be off work recovering from the surgery for another 5 weeks. I will go back to work when his need for pain medication and ability to lift improves (next week?)
The cancer stage has been set at a "C4" or T4 (Tumor size) N1 (2 Nodes tested positive for cancer) M0 (distant metastasis to other organs not currently present) on the Tumor Node Metastasis (TNM) system which means that the tumor had completely worked through the wall of the colon, and was present on the outside of the colon. (See Rectal Cancer staging http://www.meb.uni-bonn.de/cancernet/100076.html#5_STAGEINFORMATION) It had not infected the liver (the first organ of choice if the disease had spread), but it had infected two of the eleven adjacent lymph nodes. We will meet with the surgeon for follow up on Wednesday, March 20 and will have our first appointment with the oncologist that same day. It appears that both chemotherapy and radiation treatment will be required--we will know more after our Wednesday March 20 Dr. appointments.
The survival rate for this level of cancer after five years is said to be between 25 and 40%--Michael will of course be one of those.
You have my permission to openly share any of this information with others. This form of cancer is said to be curable if caught in its early stage (cancer stage A & B)--detection by colonoscopy. Wish we had known he had it anytime during the last 15 years, but until recently screening by colonoscopy was not done till age 50--Michael turned 50 in January. March 2002 is Colon Cancer awareness month. If any blood relative (Mother, Father, Grandmother, Grandfather, brother, sister, etc.) has told you that they had colorectal cancer OR had a colonoscopy and that "benign" OR malignant polyps were removed--get tested. This is an insidious, slow, quiet--nearly symptom free killer and I want to save you from sitting in the position where we are. By the time you notice symptoms--it could be too late.
This disease has ties to genetics--passed on through genes. It is also tied to diet, amount of fiber and exercise in your life.
I will keep you informed as there is new information--meanwhile--get tested! Early detection and discovery of this disease (in Michael's words) may provide a death threat--but need not be a death sentence.
Other links of interest:
Colorectal-cancer.net Staging colorectal cancer http://www.colorectal-cancer.net/stage3rectalcancer.htm
OncoLink--Anal cancer http://www.oncolink.org/types/article.cfm?c=5&s=10&ss=80&id=9201#Stage Information ;
OncoLink--Colon Cancer the basics http://www.oncolink.org/types/article.cfm?c=5&s=11&ss=81&id=7336 ;
Med-Help.net Colorectal Cancer http://www.med-help.net/ColorectalCancer.html ;
National Cancer Institute cancer.gov Colon and Rectal Home Page http://www.cancer.gov/cancer_information/cancer_type/colon_and_rectal/;
National Cancer Institute cancerwebhttp://cancerweb.ncl.ac.uk/cancernet/;
Cleveland Clinic.org Laproscopic Intestinal Surgery: a guide for patients http://www.clevelandclinic.org/health/health-info/docs/0900/0962.asp?index=4356 ;
Glendale Memoria Hospital & Health Center Questions and answers about colorectal cancer<: http://www.glendalememorial.com/wsj/w7-98_3.html ;
Harvard Center for Cancer Prevention Your Cancer Risk http://www.yourcancerrisk.harvard.edu/index.htm ;
We Heal New York Continuum Health Partners A Proper Diet http://www.wehealny.org/healthinfo/dietaryfiber/index.html#Diet
For those of you who have called, written, e-mailed or visited Michael and I--THANK you! His outlook and attitude is deemed the single biggest factor for recovery from this latest challenge in our lives and your encouragement, thoughts and prayers are very welcome.
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Hi to all
Michael continues to be in good spirits, and generally in good health. He walks about 2400 feet from our house to the main street (288th) twice each day.
Today Michael and I met with the surgeon who performed his surgery on Tuesday March 5th. Michael is still experiencing some sporadic temperature hikes (like the one that sent us to the ER on Friday night from 10 pm to 2 am). The doctor attributes this to either the continuing lung issue or to the material passing through his colon and triggering bacteria at the resection site. Either way, we have to get these two issues resolved as they both impede beginning with both chemo and radiation therapy. We will address Michael's daily intake of both dietary fiber and liquid which contributes to his continued diarrhea.
Michael has decided to have surgery and have a temporary "port" installed in his chest. His chemo will then be delivered to him via this port. The alternative to this is having this caustic stuff delivered through a vein--and we don't like the problems that usually causes. This surgery can not be done until his lung and diarrhea issues are corrected.
We met with the oncologist (chemotherapy doctor) later in the afternoon. He went over basic information about chemotherapy and reiterated that chemo and radiation therapy could not begin until the lung and diarrhea issues were resolved. He also described the proposed schedule for both therapies:
Month one: chemotherapy injected through the port (about 10 minutes) 5 days in a row (at the dr office)--once during the month.
Months two and three: radiation and chemotherapy injected through the port continuously by using a pump--carried on the belt. The pump changed out once each week at the dr office.
Short reprieve from both therapies.
Month four, five, six: chemotherapy injected through the port (about 10 minutes) 5 days in a row (at the dr office)--once during the month.
We are going to be meeting with the radiation dr in the near future and we will know more about that.
Thank you to all of those of you who have volunteered to help with the chemo and radiation therapy phase--transportation back and forth and the like. When we get an exact schedule we will be glad to enlist your help.
Thank you to all of you for your frequent contact with Michael. Your thoughts, prayers, cards, letters, calls, and time spent mean more to us than we can say. Thanks.
We will keep you posted!!!
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Hi to all!
Michael got to go on an outing today! He had lunch with his mother in Parkland, got his haircut and then we went to an appointment with the surgeon who will do the surgery next week.
When we arrived for our appointment, Michael's vital signs were taken. His blood pressure was the highest it had been throughout all the recent events--eyebrows were raised.
Dr. Glenn Deyo (surgeon in Lakewood) will perform the surgery to install the portable catheter on Tuesday March 25th. He performed Michael's recent (March 5th) surgery. It will be done on an outpatient basis so, barring any complications, Michael will be released after surgery. He will have virtually the same anesthesia he had when he went in for the colonoscopy--local only. The portable catheter (port) will be "installed" under the skin on the upper chest. The port is about the size of a cap from, say a lemon juice bottle. It has a flat metal plate on the bottom and each of the four corners has a small hole. The port is "sewn" to a muscle much in the way a button with four holes is sewn to cloth. Since Michael has been exercising, lost weight and fat, some fatty tissue will be taken from elsewhere and placed over the port--there is concern that otherwise the skin rubbing on the port will wear through. This installation will allow the introduction of material into and removal out of the port. The chemotherapy drugs are so caustic that in some patients veins collapse or worse when delivered through arm veins--which is why Michael has opted for the port. Only nurses with specialized training in administering through the port will be allowed to "use" it when treating Michael. It must be specially cared for, including flushing. Deyo reviewed all the horrible things that go wrong and the percentage of times they occur.
I am getting the firm realization that all of this is a numbers game.
The Doctor has ordered an EKG for Michael to address the question raised by a radiologist who did a chest X-ray regarding a questionable? aneurysm on Michael's heart. That is also scheduled for next week.
We figured out the issue of giving Michael too much fluid and too much dietary fiber which lead to diarrhea--that appears under control. Michael continues to do his lung exercises--and that condition is also improving.
Michael is back on Vioxx (a COXX II inhibitor--blocking the creation of a chemical associated with pain) and so he will need less narcotics for pain. Michael had been on this drug during surgery and the entire time in the hospital--but on release--the insurance wouldn't pay for it without authorization from the surgeon (who was in New York). If he continues his progress with the lung, diarrhea and weaning from narcotics--his goal is to go back to work on Monday--part time, no lifting!! It will be good for him--giving him back a semblance of "normal".
I feel like the editors of newspapers who strive for accuracy in making the following correction to the update from Wednesday.
I wrote:
"Months two and three: radiation and chemotherapy injected through the port continuously by using a pump--carried on the belt. The pump changed out once each week at the dr office."
This should have read:
"Months two and three: chemotherapy injected through the port continuously by using a pump--carried on the belt. The pump changed out once each week at the dr office. Radiation therapy every day at the doctor office."
Sorry for the confusion and mis-information.
It appears that Michael will begin the chemo and radiation therapy the week of April 9th--we will know more about the exact "protocol" that will be followed including the schedule when we have our second meeting with the Chemotherapy Oncologist and the Radiation Oncologist.
I had done a lot of research on the efficacy of doing radiation therapy on a rectal patients. Much conflicting/controversial data from studies are posted on the internet (I admit there were over 250, and I only have read about 75). Appears that patient survival rates do not improve, but the quality of life really decreases when rectal patients received radiation therapy. Have discussed this with the Chemotherapy Oncologist and the Surgeon--have yet to speak to the Radiation Oncologist. The two we have spoken to seem pretty convinced that Michael should have it. More later when known.
We are taking an outing today--Michael wants to touch base with his co-workers.
I have been allowed to work from home--can't thank my boss enough (THANKS NANCY!!). Michael and I had a discussion about this yesterday--What do other couples who both work do? Send the affected spouse to all these meetings, procedures, etc. by themselves? When we get back from our outing--I have to work at home--did only a few hours yesterday.
Michael wants me to get back to my public speaking engagements about gardening topics and Lakewold Gardens Estate. He says that it makes him feel good to know that something normal from before March 2002 can still go on. I have been contacted to do three new speaking engagements during April and May. I will do it--in the beginning, for him. Eventually it will feel normal again. We have various events planned--a camping trip to Riffe lake in June with friends; Hydroplane races in Eastern Washington (Hottie Fest, right Hil?) and two of our friends tie the knot in August at Sun Banks. Hope treatment schedules and recovery do not prevent us from participating in these events.......it would make Michael happier to be involved with them. Meanwhile--spring is here!! The last few weeks have been a blur but buds are beginning to bust out everywhere. Take time out for yourself.
We have much ahead of us with the day surgery followed by chemo and radiation starting in just weeks....
Thanks for your continued support!
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Hi to all!
Michael went in to surgery yesterday (Tuesday) for his surgery to install the portable catheter in his chest. He has lost 6 pounds since March 1st. The surgery was a success and took only one hour. Normal post operative issues--bruising and some pain--but he is just fine. The catheter that was "installed" is a round plastic thing about the size of a beer bottle cap, unlike the metal "demo" we were shown in the doctor office. It was installed in the upper left chest. After the surgery, a chest x-ray was taken to insure that it was installed in the correct position--when it isn't, the first of many potential complications kicks off. It was positioned correctly and there was no pneumothorax (another NEW medical term to us! meaning a condition where air or other gas is present in the pleural cavity, which could have occurred when the chest cavity was punctured to install the catheter). Got Michael home--he went straight to nap time.
I had arranged to give a speech about gardening and Lakewold Gardens Estate, so while Michael rested last night--I gave my first speech since mid February. It went well--was very well received--felt good to something "normal" again.
Have your Hummingbirds come back yet? Mine have always come back by my dad's birthday, March 13. This has not been a normal year for them either, apparently. I will have to get the feeders cleaned, sugar water made and the feeders up this weekend. During the height of the season we have had thirty a day, all day from sunup to sundown and they consume 2 gallons of sugar water each and every day until late August.
We will both go to work today and tomorrow (Wednesday and Thursday). Friday we have our first meeting with the Radiation Oncologist in Puyallup where Michael will receive his radiation therapy treatments. This will take place during month two and three for 5 days each week, 8 weeks in a row (with continuous chemotherapy delivered through his newly installed catheter and a pump to be carried on his belt).
We should be in for a quiet Easter weekend after that and will have Easter dinner out if Michael is up to it.
Have a great Easter weekend, be sure to take time out for yourself!! and ensure that your loved ones know they are loved.
I can not thank you enough for all the personal visits, frequent e-mails, calls, cards and other support.
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Hi to all!
Hope this finds you and your loved ones well, that you enjoyed your Easter weekend and the beautiful few days we had this week. We enjoyed a pleasant Easter Sunday with friends and family--Michael was quite tired by the time we got home but it was great to get out again. We have both returned to work--Michael puts in a few hours each day then returns home for a nap. I am back to my standard 40 plus hours each week at Lakewold Gardens Estate, between working at home and at Lakewold. I presented three speeches to Gardening and other organizations this week, one more later today.
We attended three health appointments this week.
On Wednesday we met with the Chemotherapy Oncologist (Lorrin Yee). Michael is set to begin the chemotherapy treatment beginning on Monday April 8. A needle will be inserted through the portable catheter in his chest. It will be taped down so as to stay in place until Friday, April 12. It will in turn be attached via a tube to a battery powered portable pump that will be carried on Michael's belt. The treatment will be continuously delivered via this pump. The needle and pump will be disconnected on Friday after treatment. We are about to discover whether or not Michael gets sick when exposed to chemotherapy. We spoke to Yee about radiation therapy. There are certain standard treatments given to patients who meet specific criteria. In Michael's case he had some significant strikes against him--because of his family history with colon polyps (father had polyps removed during a colonoscopy), and because two of Michael's lymph nodes had become infected since Michaels cancer tumor had grown undetected for so long, Chemotherapy combined with radiation is almost always recommended for patients who have this combination of strikes. However, Michaels surgeon (Glen Deyo) had performed a very specialized surgery on Michael, one that few non-European doctors perform (meso-rectal resection)--and that provided a very positive situation in Michaels favor. Studies seem to indicate that patients similar to Michael who have radiation treatment do not survive any longer whether or not they get radiation treatment. However, those who do get radiation almost certainly experience some of the serious side affects which then affect the quality of the rest of their lives--however short or long it winds up being. Yee asked me to keep an open mind about radiation therapy.
We met with the surgeon on Thursday--Michael is recovering nicely from both the original resection surgery and the catheter surgery. We are still tweaking food, fiber and liquid intake to normalize bowel function.
We met with the radiation oncologist (Kenneth Bergman) on Friday. He reviewed Michaels entire case with us and all the pros and cons about radiation treatment. Michael and I have to decide whether or not to subject him to radiation treatment by Friday, April 19--he would begin treatments in early May. The doctor confirmed what we have already learned on our own by reviewing the mass of literature available--radiation treatment for Michael will not improve his chance for survival, and, if treated he will most likely suffer serious side effects that will affect him for the rest of the time he lives. Chemotherapy will do its job to kill the microscopic cancer. The very specialized surgery that Michael had will help to prevent possible recurrence of the cancer at the surgery site. I can not say enough about early detection--especially if you are at risk due to family history. We have much to consider during the next few weeks.
Thanks for all your support through these times. Be sure to take time out for yourselves and remind your loved ones that they are loved.
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Hello to all!
We had a great weekend. Michael felt well enough that we ventured out every day. Friday night we went to a movie at our friends house. Saw a haunting movie with Jack Nicholson "The Pledge". Saturday I gave a speech and afterward we went to a Jeep club event with the "Over The Hill Jeep Club" annual banquet. We visited with friends, had dinner and then headed home. Michael is good for a few hours--then needs a nap. Sunday we had planned to watch the NASCAR race with other friends--the race was rained out but we had a GREAT dinner and visited. Great weekend prior to starting treatments.
Michael started chemotherapy on Monday and other than a 2 hour bout of diarrhea Tuesday (yesterday) he appears fine. Our appointment was at 11:00 a.m. on Monday. "Installation" did not actually occur until 1:00 because we had numerous questions--and we have decided not to expose Michael to radiation. This, of course, changes what "protocol" treatment he will have.
The staff checked Michael's blood levels--"too" low on any one (white blood, red blood or platelets) and chemo treatment would have to be postponed. White cell and platelets were both fine. The red blood cell count is low--not low enough that the insurance company will pay for the shot that increases it, but low enough to make Michael weak and tired. Not the best way to start treatment. As the chemotherapy destroys good cells right along with the bad--we had to discuss what happens if it goes too low and the shots don't help. Transfusions. Michael has AB negative blood. It is a rare type and we may have to cross that bridge within two weeks. Blood is only "good" for 20 days after it is donated. If you know of someone who is AB negative who would donate blood to the blood bank in Michaels name, please contact them. Depending on how serious a problem this becomes, we will set up a telephone tree and let them know--we will keep you posted.
To get ready for this first treatment, a special needle was inserted into the port in his upper left chest. It is attached to a tube which is in turn attached to a pump that Michael carries on his belt--much like a "fanny" or "butt" pack. The pump delivers 1 ML of 5FU (the chemotherapy drug) into a vein that leads straight into Michael's heart through the portable catheter he had installed a few weeks ago. He will receive 96 ML (once each hour) via the pump until 96 hours have elapsed (Friday at 1:00 p.m.) We have an appointment then to have the pump removed.
Michael will then get two weeks off and we begin again. We will speak to the doctor again on Friday and verify this protocol works for Michael and if it does--the treatment will go on for six months. Weeks one and four with the pump delivering 5FU and weeks two and three the "regroup"--no treatment period. Because Michael has decided to use the pump, he will not be given the vitamin leucoverin. It is usually only given when the chemotherapy is given in a single dosage. It serves to potentiate the effects of the 5FU and with the pump method, it is not required. We will keep you posted.
Michael has been able to work a few hours most days--he hopes to go in today.
The hummingbirds here have come back in full force! We sat out on Monday night from 7:30 to 8:00 PDT to watch the "show". We counted 20 hummingbirds slurping down in preparation for the evening fast. It was AMAZING to be observing so many at one time. We now go through six cups of sugar water each day--and the number climbs every day. The hummers must have told others, cuz we have more now at this time then we had one year ago. Eventually we will be shelling out 2 gals of sugar water, a day every day in twelve feeders to maintain about 30 hummers. Would you like an invitation to one of our hummingbird dinner parties? Just let me know and we will arrange it. My boss has agreed to the purchase of hummer feeders for Lakewold Gardens Estate. I have agreed to fill, clean and maintain them. We know hummers are at Lakewold cuz they get trapped in the Sun Room occasionally and we have to climb our tallest ladder to rescue them.
That's it for now. Take time out for yourself and tell your loved ones that they are loved.
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Hello to all!
Hope this finds you and yours well, or with all the various stories pouring in--on the mend, out of the hospital, recovering etc.!!
Michael finished his first course of chemo yesterday--96 straight hours via the pump. He appears fine--has what are deemed "normal" side affects in the form of diarrhea, some bleeding, nausea, lack of desire to eat, exhaustion. The nausea has increased, so he is taking Compazine. I was very concerned about giving him this drug as I had a severe anaphylactic shock reaction to it (no neck muscles, eventually had difficulty breathing...). This is apparently a rare reaction and he has done just fine with the medication. We were told that the red blood cell count really plummets about 10 days after each course of treatment, so Michael goes in for a complete blood work (CBC) on April 22. We discussed paying for the shots that promote the increase of red blood cells ourselves (if his count is so low he can't function but not low enough that insurance will cover it!) and were told that the shots cost $800 each and he would have to have one every day for five days. The nightmares that wake me up at night remain the ones where we won't be able to afford the treatments required to get Michael well. Our hope is that his body will manufacture red blood cells without requiring shots or blood transfusions.
It appears that the doctor is reconsidering the chemotherapy protocol that Michael must be on. We go to see Dr. Yee about this on Monday. He suggested to the Oncology nursing and scheduling team that he will change Michael to a schedule that is one week on chemo, then three weeks off (instead of two weeks off). This one on, three off schedule would continue for the remaining five month period. It remains our goal to continue with all the plans we have set. There is a black belt event, two weddings, a camping trip to Riffe Lake, a huge plant sale event in Puyallup the last weekend of this month, an auto parts show in Oregon, and a date with a few of our favorite hydroplanes in Eastern Washington. Michael hopes to be up for these events--it will certainly help his outlook to maintain normal activities. We will keep you informed.
Enjoy the weekend, do something special for yourself and be sure your loved ones know they are loved.
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Hi to all. Hope this finds all of you well.
We have not had any new developments. Michael had the pump off for 10 days effective Monday the 22nd, so we went in on that morning for his "blood labs" (CBC--complete blood count). We will get the results today from that. Apparently, red and white blood cell as well as platelet level counts drop dramatically by the 10th day after the last chemo treatment day. The typical result is extreme tiredness, possibly anemia and exposure to any form of infection can have dire consequences (with low white cell counts). Bottom line: The insurance (chemotherapy) against the microscopic cancer particles that the lymph nodes might have distributed leaves Michael open to anemia and possible infection. Michael is tired--he goes to bed not later than 10 (usually 9) gets up by 8, works for 4 to 7 hours and comes home and takes a nap. We have participated in limited activities--try to still have a life while not straying to far from home so he may rest when he needs to and not expose him to infection. Otherwise, he is doing rather well. Many people look at him and remark how well he looks. Food does not taste particularly good to him. I have told him that he must eat, even if food does not taste palatable.
In other medical news--I had a problem with my right eye last week and had to go seek attention. Apparently some fluid dislodged (not detached) the retina causing fluid and particles to seep out--so I now have more "floaters" in that eye. The doctor wanted to know if I had endured any stressors recently!!! as that is a major cause in the absence of physical trauma like a blow to the head or eye. There is no cure, there is no prevention and I am to reduce my stress level. While we were away in late February visiting family and friends in Arizona I had experienced some problems with my lower GI tract. With the extreme end of Michael's health issues behind us, we have finally begun to address that.
I had the opportunity to speak at the Little Puyallup Fair at 2 p.m. on Saturday. My topic was hummingbirds, butterflies and birds in the garden. Michael went and we estimate the crowd at its peak at about 55 people. It was fun to do and these kinds of activities go a long way to providing me a positive avenue to focus on. If my classes have enough people signed up, I am teaching three two-day classes at TCC about gardening topics in May through June. We will see ... The gentleman (Cyrus Happy) with whom I am collaborating on a book about gardening met Tuesday. We will strive to spend two hours together each week in getting his (40K) slides organized in order for me to begin digitizing them. He is 78 and has spent over forty years photographing wild plants in the Lakewood/Ft. Lewis area.
I think that's it for this update. It is spring and at 5:31 a.m. the birds are chirping madly and I am off to today's activities. Be sure to take time out for yourselves, our love to all of you.
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Hi! to all! BACK due to overwhelming response!! Sorry I have not written for a while, many of you have asked if you were taken off the list, cuz you had not heard from us.
I am glad to hear that those of you who have been in the hospital are out and improving, those who were injured are recovering and that all of you are generally set to enjoy spring.
There is not too much to report this time. Michael went in for his 2nd chemotherapy pump hook up on Monday May 6. the nurse who was attending to him was so angry and attitudinal that I have filed a complaint against her with the facility itself, the nursing service where she works and the review board for oncology nursing care. I was quite frightened that she was so out of control personally that she would hurt Michael--intentionally or not. Her attitude problem had nothing to do with us--she was angry and out of control when we arrived and never improved. Hopefully her days of "caring" for patients are numbered.....
Meanwhile--back to Michael. He was hooked up to the pump on Monday, went through the entire week. He has experienced more symptoms this time. Mouth sores, not severe, but he had none last time. He still gets quite tired, though he vows that he will work as many hours as he can since he is out of paid leave. Having made it through the entire week, the pump was removed on Friday May 10. Michael is controlling the normal side effects of chemotherapy with the appropriate medication--Compazine for the nausea and Imodium for the diarrhea. Food doesn't taste quite right but he manages to get it down. He must supplement each day with "Slim Fast" which supplies the required dietary fiber and the nutrients he needs. Michael hates spinach--but has come to eat it. It provides a good source of both fiber and iron. Blood levels plummet by the 10th day after treatment and we are trying to do what we can with the foods he eats to keep those good guys on the job. We go in on Monday May 20 for the 10 day post chemo disconnect blood work. Our next health update will be out after we get the results from that blood work.
We enjoyed the evening out with friends and a wonderful Mother's Day Brunch event at Lakewold Gardens Estate. If you live anywhere near Lakewood, Washington, I highly recommend this annual fund raising event that is put on by Lakewold. The weather on Sunday was gorgeous, for those of you not living in western Washington.
Michael and I sat out on the deck and enjoyed the hummingbird feeding frenzy just before dusk on Tuesday evening. There are at least twenty hummers now and we go through a gallon of sugar water in two days. There are clearly more hummers than last year. They are Rufous males, females and juveniles.
The best to all of you. Take time out for yourself and make sure the ones you love know they are loved.
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Hello to all!!
Hope this finds you and yours in good health!!! and enjoying your summer.
Michael has completed his fourth course of 5FU chemotherapy for the treatment of his colorectal cancer and had the pump removed on Friday July 5. Remember how in the beginning Michael and I wondered if he was indeed getting the "real stuff", cuz he seemed to "breeze" through the treatment and his blood counts bounced back to normal? His care providers were quite surprised!
Well...He dips a bit lower each treatment, is very quickly tired--stays tired through the entire course and does not quickly bounce back. A few of his blood counts were off this time--they did not bounce back to where they should have, so, we will have to have them monitored and take corrective action if they are not what they should be when he starts treatment number five after his three weeks off.
He continues to go to work every day--must take naps after work some days. This incredible "heat wave" we are currently having does not help!!
I had to go to the hospital on Sunday morning. Was bitten by three bees (one lower left leg--one knuckle on each hand) at 2 pm on Saturday while weed eating at home. Michael and I agreed that if the swelling reached my wrists--we would head in to the closest hospital (Lakewood, Washington). Had to get an intramuscular shot, took 12 Benadryl in 24 hours, and am still taking corticosteroids--but am better. The swelling finally went down so I could grip the steering wheel. Guess I will have to start carrying an epi-pin. I am amazed people who have to take Benadryl everyday for hay fever (like Michael) can function and drive, etc. Michael's hay fever had virtually gone into remission over the last two years--but the chemo treatments have made his hay fever worse than since I met him.
Hope you had a great 4th of July celebration!! We had the opportunity to go with some friends to the SAFE (Safeco Field, Seattle, Washington) and watched the Mariners (M's)!!! How patriotic--B-ball, hotdogs, peanuts, crackerjacks--My, oh my!
Plans are underway to head to Monroe this weekend to watch a NASCAR event up there. Michael has crawled under the coach every day since late June trying to identify and correct electro-mechanical problems. Resolved--we plan to leave on Saturday. NHRA races in the old Seattle International Raceway (SIR) facility (now Pacific Raceway?) in a few weeks with Sam-the-man (who got his second degree black belt in Tai Kwon Do recently!!), a wedding in early August, Picnic and Pops concert in mid-August.......busy summer.
How are you doing in accomplishing YOUR life list? We plan to go to Albuquerque NM with my parents in October to watch the hot air balloon mass ascension. They have a great website--check it out! Albuquerque New Mexico Hot Air Baloon Festival! http://www.balloonfiesta.com. Daughter Hilary may join us!! Get your list made and accomplished.
Hey! for those of you who live local...
Lakewold Gardens Estate is hosting its 8th annual event "Lakewold's Great American Picnic and Pops" outdoor concert and BBQ on Sunday, August 18. Check out the information (have not had an opportunity to make all the changes to the website Lakewold Gardens website that occurred as a result of our meeting late yesterday)--but check it out and watch for the updates at Picnic N Pops. Hope to see you there!!
Love to all of you!! and an especial note to all of the June and July birthday babies!!! there are a lot of us. Happy birthday to you. Be sure to share your love with your loved ones.
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Hello to all! Hope this finds you and yours well. Spring has returned to the Pacific Northwest and many bushes, shrubs, trees as well as herbaceous plants are just bursting with color-it truly is quite an awesome sight after the doldrums of winter.
Sorry, but this is going to be a long one…but many of you have asked what our current status is. This "tome" describes the last roughly, 30 days of our lives.
At my last writing Michael had been in remission from his colorectal cancer AND we were confident that he would remain so.
From the beginning, (March 2002) we knew that the cancer had spread to two lymph nodes. They were surgically removed with the colon cancer tumor (March 2002). Michael completed his course of chemotherapy (October 2002). The results of the blood test in early December 2002 indicated that the level of the CEA marker was within normal range (registering as a one). We celebrated his three-month remission. Unbeknownst to us, the lymph nodes had spread the cancer cells to the first organ of choice-the liver. The cancer cells were too small to be detected with the standard testing utilized (CEA marker for the blood). But they grew, undetected, despite and throughout the chemotherapy treatment (5-FU and leucoverin) that Michael underwent last year through October. This cancer is very aggressive and did not respond to the 5-FU chemotherapy.
The results of the CEA marker test done in late March 2003, registered at 7.2. With the results being so high, the Oncologist ordered a second test, thinking that the test was incorrect. The test was re-run and while the number came down to a 5.1, the number was still five times greater than the normal range. A CT scan was ordered and completed on April 7. We met with the Oncologist on Wednesday April 9th to review the results of the CT scan. That turned out to be a very long day, with other very long days to follow. The cancer had metastasized to the liver. The scan indicated that there were nine tumors-seven on the right lobe and two on the left lobe of the liver. The largest one (on the upper right lobe) was located on the surface of the liver and measured nearly two inches in size.
In the beginning of the consultation, the Oncologist was visibly distraught, somewhat withdrawn and unlike our previous contacts with him, he did not openly share information with us. We were communicating on the basis of my asking him questions and him responding with one word or short phrases. I pointed out that this form of communication was not going to work for me. I did not know what questions to ask and he needed to tell us what was going on and what the next step was going to be. We got it with both barrels after that and Michael and I were not prepared for the very grim information he then provided.
The nine tumors were considered surgically inoperable-they collectively comprised too much of the total area of the liver. Radiation was not an option for the same reason. The chemotherapy regimen that Michael underwent last year did not destroy the cancer cells so the next regimen would have to be a stronger one. If Michael chose not to undergo the chemotherapy, he was not expected to live more than six months. Even if he did choose to undergo chemotherapy, he was still not expected to live for more than 17 months. There are simply no words to describe how Michael and I felt and are feeling. Many tears and many questions were followed by a complete sense of loss and hopelessness.
The cancer is very aggressive and in this stage of development the cells are doubling at an alarming rate. The Oncologist wanted to arrange to have a biopsy of the liver tissue and suggested that Michael undergo an operation as soon as possible to have a new portable catheter installed where the previous one had been in the upper chest.
I called Dr. Glenn Deyo (Lakewood) who had performed the very successful surgery last year and arranged for us to meet with him on the next day (Thursday April 10).
Afterwards, Michael and I went to lunch, we did not eat much, but needed to decide what was next. As a part of my job at Lakewold Gardens, I have been doing public speaking to various groups-and I had a speech on that Wednesday night. Michael insisted that I continue with my normal activities and he accompanied me to Bonney Lake where I spoke for two hours about Lakewold Gardens and container gardening. What a guy-he is quite remarkable. He is just diagnosed with terminal, non-survivable liver cancer and he wants me to deliver a speech several hours later!
We met with Dr. Deyo on Thursday April 10. Speaking of unbelievable people-he is truly amazing. Apparently Glenn has been trying to get St. Clare Hospital to buy some very specialized equipment so surgeries that can not currently be performed there can be. Through a series of phone calls, he arranged to have this equipment (which is manufactured by RITA) to be taken to St. Clare Hospital (Lakewood)-as a demo and other equipment shipped from Oregon, etc. to perform an operation on Michael on Friday, April 11. Glenn felt that while surgical removal of the tumors was not an option for Michael, Radio Frequency Ablation (RFA) of the tumors was. This procedure was not being offered as a cure for the current situation, but would provide us with more time. Glenn felt that Michael was the perfect patient for this operation. The cancer was currently confined strictly to the liver; Michael was in all other respects, healthy, etc. The surgery would have three phases. During the first phase, a portable catheter would be installed in the upper left chest (just like last year). In the second phase, the liver biopsy would be performed. In the final phase, the ablation of the tumors. Glenn estimated that the entire procedure would last about 4 hours.
We arrived and Michael was prepped for surgery at the St. Clare Hospital on Friday, April 11 (three days after CT scan results). Special thanks goes to our friends who came and sat with me during the seven hour and thirty minute surgery. Maurie, Dave, Donna, Mark and Diana--your strength and friendship helped me make it through. Glenn came out and gave me a big hug after the surgery. He felt that the surgery had been very successful and that Michael came through it well. Glenn indicated that he had been able to get all nine of the tumors (he initially thought that he may have to leave some if removing them constituted leaving less than 25% viable liver mass). Glenn thought that about 65% liver mass remained in tact.
Michael remained in the hospital until late afternoon on Sunday, April 13. I decided that if Michael were up for it and his doctors approved, we would go away for a few days to a sunny place. A quick getaway might be just the thing to bring color back to Michael (who was a bit yellow after the procedure). Both Doctors approved and we arranged a trop to Las Vegas and met up with my parents there for a few days (April 17 through early morning on the 21st). On Wednesday, April 16, Sammy and Dave (thanks!!) provided us with some printed information about Artemisinin-a plant extract from Artemesia annua that holds promise for patients with specific forms of cancer-liver cancer being one of them. We went on our quick getaway and enjoyed a few days visit and sunshine.
Back to reality--We met with the Oncologist directly after we got off the plane on Monday, April 21. He did not hold much hope that the RFA procedure changed the survival rate or course of the cancer. He explained the various options for chemotherapy regimens that Michael would have to undergo. The concoction would have to be stronger than the last one since the cancer did not respond to the prior treatment. All of the options were unpalatable. Michael could expect all the same symptoms from before-nausea, vomiting, diarrhea, fatigue, and changes in blood cell counts with an added one-damage, likely permanent and irreparable damage to the peripheral nerves. Meaning a loss of sensation in the fingertips and toes, feet etc. that would eventually lead to not being able to sense the feet when walking. This usually leads to much falling down. At the end, we discussed the efficacy of Artemisinin (thanks Sammy!!). We may very well have to strike out on our own if we decide to go that direction with follow-ups (CT scans and CEA marker tests) by the Oncologist. Michael and I were once again bereft when we left the Oncologist. Chemotherapy treatment schedule was set--to begin on May 7th.
Tuesday, April 22, back to the hospital for a CT Scan and blood draw in preparation for our meeting on Wednesday with Dr. Deyo. I had done some Internet research about Artemisinin (thanks Sammy!!) as well as the protocol follow-ups for this cancer. Clearly, the CEA marker and the CT scan let us down-the tumors went undiscovered way too long, and grew to life threatening size before discovery--there must be something out there that will identify them earlier. I printed out a bunch of stuff and delivered it to Deyo's office.
On Wednesday April 23, we met with Glenn. He opened with his positive sentiments about the research I had done regarding Artemisinin. Glenn will speak to a prominent local Oncologist and try to get more information about Artemisinin. Michael and I will consider the various options. We described our feelings of "schizophrenia"-limited, little or no hope from Oncology at one end, positive, hopeful outlook (while NOT a cure…) being demonstrated at the surgery end. We need a Glenn Deyo on the Oncology side!!! Glenn seemed to think that a repeat of the RFA might be needed if more tumors appeared and this will be closely monitored. Michael is now anemic and will start a course of iron.
Friday we went to yet another appointment. Had a visit with Social Security yet? I was in tears, we were so rudely and inhumanly treated. We asked to speak to the supervisor and complained that the first interviewer should NEVER be allowed to speak with terminally ill people. More bad news...A person must be unemployed (or make less than $800 per month) before their disability account can be activated. Then, once activated, they must sit unemployed (or less than $800 per month income) (which will obviously lead to loss of medical benefits) for a period of five months before disability payments can be made. If Michael's life expectancy is six months, he will not receive a dime, despite paying into the system for over 30 years. Very disappointing and implies a dramatic financial impact.
Over the weekend (April 25 through 27) I spent about 15 hours on the Internet, finding out more about metastatic cancer of the liver, follow-up protocols, boosting the immune system through diet-and fighting the cancer with Artemisinin.
After much discussion, over the weekend, Michael and I have decided that he will most likely decline chemotherapy. Whatever the time he has remaining, he is concerned about quality of life issues, and chemotherapy will most certainly rob him of that. He is going to self-administer Artemisinin and hopefully the oncology group will do standard follow-ups.
Monday, April 28. Michael went back to work today, situation normal save some residual discomfort from his recent surgeries.
I think that should about bring all of you up to date. I will keep you posted as there are new developments. Please feel free to share this information with others. If we can, we'd like to help to prevent this situation from happening to anyone else.
Remember to take time out for yourself, and remind the ones you love that they are loved.
Related Internet links:
Liver Cancer:
American Cancer Society cancer.org Surgical Therapy of Hepatic Colorectal Metastasis http://www.cancer.org/docroot/pub/content/pub_3_8x_surgical_therapy_of_hepatic_colorectal_metastasis.asp
Patient Centers.com Colon and Rectal Cancer Prognostic Factors http://www.patientcenters.com/colon/news/prognostic.html
Institute for Traditional Medicine Prognosis after diagnosis of liver cancer: The influence of Chinese Herbs http://www.itmonline.org/arts/livcancr.htm
Proceedings of the International Conference on Nonrandomized Comparative Clinical Studies in Heidelbelberg, April 10 - 11, 1997 Adjuvant chemotherapy after liver resection for metastatic colorectal concer http://www.symposion.com/nrccs/lehnert.htm
Radio Frequency Ablation (RFA):
RITA Medical Systemshttp://www.ritamedical.com.htm
Artemisinin:
Institute for Traditional Medicine Ching-Hao and the Artemisias used in Chinese Medicine http://www.itmonline.org/arts/chinghao.htm
National Library of Medicine NCBI Pub Med Selective Toxicity of Dihydroartemsisin and Holotransferrin Toward Human Breast Cancer Cellshttp://www.ncbi.nlm.nih.gov/entrez/query.fcgi?holding=f1000&cmd=Retrieve&db=PubMed&list_uids=11764006&dopt=Abstract
[There are many, many, many more citations....just ask and I will send them on.]
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Hello to All!
Hope this finds you well. Some have recently been hospitalized--glad you are all out, and on the mend. We have been having record heat here! Many forest fires, much loss of property and some lives. Be careful out there!
Well....
It has been a while since an update, and now you can get it them as they are written here online.
The last medical event was held on Monday, June 16, 2003. Michael was hospitalized to have an second Radio
Frequency Ablation surgery to ablate a tumor. The surgery took just 5.5 hours and went so well that Dr. Deyo said that Michael could go home if he could: control pain, cough and clear his lungs, get up and about, etc.
Michael was unable to control the pain, so he was kept overnight, but released the next day for a week bed rest at home. I stayed with him for a few days, then when he was more stable, my folks took over so I could go back to work. Thanks, Mom & Dad!. Michael has since gone back to work and was doing well.
Dr. Deyo and Ann had to leave the day after surgery to help provide home care for his mother-in-law (out of state). She recently died and Dr. Deyo returned on Monday, August 5, 2003. Our thoughts and prayers are with the family.
Our appointment was yesterday and after nearly sixty days, we got a medical health update late yesterday afternoon.
The good news is that the cancer has not spread to any other organ (typically the lungs would be next).
The bad news is that Michael has two tumors in the upper right portion of the dome of his liver. We were devastated. Michael admitted that he had experienced pain and pressure in that area--everytime he has these "feelings" there were physiological findings.
The tumors have nearly doubled in size since the surgery on June 16, 2003, according to the CT scan performed last Friday (August 1, 2003) so Dr. Deyo indicated that if he could, he would do a third Radio Frequency Ablation surgery today (Weds. Aug. 6, 2003). But, he needs the same specialized equipment, and surgery team and time slot, so it looks like the surgery will be Friday, August 8, 2003 (earliest) and more probably Friday, August 15, 2003.
Part of this delay is, again, that St. Clare Hospital does not own this specialized equipment and must "borrow" the pieces from other organizations and the company that makes/sells it.
We went out to dinner, and discussed the implications of a third surgery. Michael is well enough to undergo it, but this news of yet another surgery has taken a toll on his spirit.
Outside the other personal issues associated with surgery: the monetary issue can not be ignored--each surgery is averaging about $12,000 due from us after insurance coverage. UGH!!!! If you would like to help...visit our Fundraising Events page.
As usual, Michael wants us to continue our "normal" lives--we are leaving for a training day in Seattle now.
I will keep you posted on the newest developments!
Thanks for your thoughts, prayers, support. It has been a source of strength for both of us!
Be sure to take time out for yourself, and ensure that the ones you love know that they are loved.
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Hello to All! Hope this finds you and yours well.
A quick update on our present situation. Dr. Glenn Deyo has arranged for Michael's third Radio Frequency Ablation surgery on Friday, August 15, 2003 at St. Clare Hospital in Lakewood. The last surgery (the 2nd RFA) lasted 5.5 hours and Michael stayed overnight. This one involves the ablation of two tumors and may be trickier--we don't know how long it will take and whether or not an overnight stay will be required. Glenn believes that one tumor lies along an artery that supplies blood to the liver. When the probe is used, the right amount of heat is not being evenly maintained between all four prongs of the probe--the artery is itself cooling off one of the prongs and "even heating" is not being maintained. So, the tumor cell was not fully killed in June.
Glenn plans to perform a procedure called the "Pringle maneuver"--shutting off blood supply to the liver long enough to allow the probe to attain and maintain the proper temperature so that the tumor cells running along side of it can be killed. Of course this bears the risk of the liver atrophying if denied blood too long .... We believe in Glenn, and know that he will do everything he can to prevent further problems for Michael.
I did a bunch of internet research last night (could not sleep and was up to 4:30 p.m. doing this research). Please see the new stuff at:Liver issues so you know more and know what is in store for Michael. As always, thanks for your thoughts, prayers, support it makes all the difference.
Details for the September 27 event are coming together. Please consider either attending, and or donating to this fundraising event. All proceeds will go to the "Donation Account for Michael Blair" at KeyBank. Check out the cool stuff that has already been dontated !
We will have a quiet weekend, enjoy yours as well, and I will keep you posted on the latest developments.
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Hello to All!
Sorry if you tried to acces the website since yesterday--with NY power knocked off, the website was temporarily out of commission. If you are reading this, all is now right in that department.
Have you taken time out for yourself, lately? Hope you have, you deserve to. Have you made sure that the one you love knows that they are loved? They deseve it. Pull a Nike and "just do it" [smile]
Today was Michael's third RFA surgery. Checked Michael into St. Clare Hospital at 9:30 a.m. for surgery at 11:00 a.m.
The surgery before his ended a bit early, so Michael was in surgery just prior to 11 am.
In earlier Health updates I mentioned that Dr. Deyo places a material (think of it like "Saran Wrap") around the liver after RFA procedures. That material dissipates after a period of time. The length of time between Michael's recent surgeries is not long enough for that to happen, so, the first few hours of surgery today was spent in breaking the adhesions between the various organs so that the liver was made accessible.
The surgery took nearly five hours (including closing time) and was deemed succesful. Two tumors were revealed in the August 1 CT Scan--three additonal tumors were too small to be detected by that CT Scan, but were discovered during surgery. So, Deyo ablated them also. In Michael's case, the cancerous tumors grow/divide very rapidly and so early detection and elimination (by RFA) is critical to his very survival.
Dr. Deyo did not need to shut off the blood supply to the liver ("Pringle Maneuver"), which was a very good thing!
During our discussion after surgery, Dr. Deyo indicated that we should continue the CT scans (about six weeks apart) and subsequent RFA procedures until all tumors are eradicated. It has been shown that cancerous tumors emit something that literally prevents other tumors from growing--ensuring their own life. The large tumors were destroyed in the first RFA (April 2003) and so this recent crop of little ones might be attributable to the eradication of that big one.
Basically, cancer cells suck! Sorry for that temporary breach.
The number of "hits" (metatstatic tumors found in the liver), being confined strictly to the liver is found interesting. To date, there is no evidence of tumors elsewhere (e.g, the lungs, the bowel, the brain, etc.). This is a good thing!
Did the liver "catch" all the cancer cells?
Michael will spend this night in the hosptital, but will be released about noon tomorrow.
That is about it for this update. I have got to get some sleep. I will keep you posted.
Congratulations to Michael's namesake who weds a wonderful woman tomorrow!
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Hello to All!
Michael continues to recover very well after his third Radio Frequency Ablation treatment (performed on Aug 15, 2003). We went to a post-operative appointment with Michael's surgeon (Dr. Glenn Deyo) on Wednesday August 27, 2003. During the consult, Dr. Deyo suggested that Michael should have a CT scan six weeks from the RFA date (on September 26) and if any tumors were discovered that the RFA treatment be repeated a fourth time. Michael's particular form of cancer is particularly problematic because of how aggressive it is--tumors tend to double at an alarming rate. Tumors that were too small to be detected durng the August 1 CT scan (less than 1 cm) were visible during the RFA treatment on August 15--just 14 days later.
Because the fundraising event for Michael is scheduled for Saturday September 27, we will schedule the CT Scan for one day the following week (Sep 29 to Oct 3). If tumors are present, a fourth RFA will be scheduled (likely during the week of Oct 14 to 17). Dr. Deyo also expressed his concern regarding the number of tumors treated. To date, Michael's liver has sufferred assault by 19 tumors (and subsequent RFA treatment). Deyo is concerned that with the shear number of tumors cropping up in the liver, was every particle of cancer caught in the liver? or perhaps cancer cells may also appear in Michael's body cavity, lungs, etc. We will, of course, continue all the diagnostic methods available to us to monitor this situation.
Michael is managing his pain level--and has begun to taper off how much pain medication he has to take each day.
Thanks to many very generous people, Michael and I travelled to Eastern Washington to attend the Nity Gritty sponsored playday event at the City of Richland Horn Rapids ORV Park over the Labor Day weekend. Kathy Martin acted as our nurse consultant to ensure that Michael was safe while racing. We tried three various methods of protecting his portable chemotherapy catheter--so he would be safe to race. Michael ran both the Barrels and Obstacle (OB) courses on Saturday. He did not have record beating times in either event, but it was sure great to see him out there racing! Because the vehicle broke during each race, I did not race in either of these Saturday events. But, Michael and friends got it fixed (again) and we each raced during the Team Relay (women then men) event on Sunday. The jeep worked great in all but one area all weekend! We have but one major thing to address: the rear driveline and associated parts. With each start from the gate, the rear driveline was launched from the vehicle when the rear yolk got tweaked... or something like that! Michael has the technical version of the story. Thanks to all those who helped make this incredible gift possible for us! Thanks also to Bob Halliburton, Leyland Powell; Dave, Mike & Steve Rink; Roy, Joe, Frank, & Luke May; Kevin Parker; Rod Leetch, amongst others, who pitched in throughout the weekend to get the jeep back on the track! It was a really great feeling to go racing again! Thanks go to the many who made it possible.
Michael and I hosted a "Thank You to PNW4WDA Members" Ice Cream social at our camp on Saturday from 4 to 6 p.m. (8 gallons) and at the track on Sunday (7 gallons). [We also served a few "Mudslides" to adults!] Thanks go to Jen Rink (the original), Jen & Mike Rink (the newleyweds!) Donna & Dave Rink; Adrienne, Naomi, Kathy Martin; their friend Sarah; Shellie Leetch; her friends Kim & Marci, Liv Fouty for all the help, setting up/tearing down and serving.
Well, summer begins to draw to an end.
Take time out for yourself, you deserve it. And, make sure the person whom you love know that they are loved.
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Hello to All! Hope this finds you and yours doing well and enjoying fall "in your neck of the woods"!
While this is not technically a "Health Update", it comes just days before one, and there is a bit of news to share regarding our story.
After our recent trip, ( | Celebratory Keep Blair Alive "six-month-survivor-trip" to Cabo) I spent some time on Monday working on "Keep Blair Alive".
Michael's next CT Scan is scheduled for Thursday, October 16, 2003. For those of you who have followed our story from the start, or have joined us in progress, Michael was not expected to live to see October 10th, so he has met a milestone, just getting to the 16th of October to have a CT Scan!!
Due to scheduling issues, Michael's surgeon, (Dr. Glen Deyo, Lakewood) is unable to meet with us to go over the results of the CT Scan until Wednesday October 29, 2003. You can do the math, you realize that that means 13 days of nail-biting-worry until we discover--Are There New Tumors, (or not?); If There Are Tumors, How Many Are There? AND How Big Are They?
We asked that the Oncologist (Dr. Lorrin Yee, Lakewood) be allowed to give us the report, because we can meet with him three days after the CT Scan, (i.e., ten fewer days of nail biting!) So, we will know the results of the CT Scan on Monday, October 20, 2003 and will post that information here, once it is known.
Next topic--the "good" end of the continuum always takes care of itself. If there are no tumors, Michael begins his period of "remission" from cancer! (please send your thoughts and prayers our way for that, please).
How do we prepare for the opposite end of the continuum? What if there are tumors--when can surgery be scheduled?
This proves problematic. Dr. Deyo will be out of the office from Ocboter 31st through November 11th. We have learned that Michael's particular form of cancer is very aggressive. The CT Scan performed on August 1st indicated the presence of two tumors, but by the date of the RFA treatment (August 16) three additional tumors were visible and large enough to be operable. It is easy to infer that if tumors are present, surgery must be scheduled quickly as the tumors progress in size rapidly.
I was quite rattled when I learned that surgery by Dr. Deyo might not be possible until sometime after November 11th.
Plan "A" has been "no tumors--no action required". That has not happened yet this year.
Plan "B" has been "tumors present--Dr. Deyo establishes and performs surgery within the week"
We are faced with establishing:
Plan "C"--"tumors present--Someone Else performs the RFA treatment". Ugh, and very scary.
I called the RITA company that manufactures the specialized RFA equipment and asked for the name of a facility that has the equipment and a trained practitioner who could perform the treatment if it can not be performed by Dr. Deyo prior to November 11th. I was provided the name of both a facility and a practiontioner--hopefully we will not have to institute "Plan C", but let's face it--this is all about "Keep Blair Alive" and that is my number one priority.
I do not have more to report at this time.....Please keep us in your thoughts and prayers! and I will post new information here when it is available.
Thanks for all of your support!!! Be sure to take time out for yourself (you deserve it), and ensure that your loved ones know that they are loved.
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Hello to All! Fall has indeed returned to Western Washington, and with it, associated winds and rain. The latter we need--the former we could do without!
It was the perfect weather for a date with a Radiologist for a CT Scan. Just kidding, we will go nuts without some humor. [smile]
Michael drank his "banana barium" stuff last night prior to bedtime, followed by the prescribed doses early this morning and he endured his latest CT Scan at 8 a.m.. We will not get the results until we meet with Dr. Lorrin Yee on Monday. Nail biter weekend coming up. Thanks for your e-mails, cards and phone calls. It is all appreciated, and we are grateful for it.
We headed off to the St. Clare Hospital cafeteria for some breakfast afterward. A member of the nursing staff (so many now know us on sight!) joined us during her break time and we spent some time together. I was honored about her remarks about this website.
She indicated that the website was a dream-come-true for nursing students, because it allows them the unique opportunity to follow a patient all the way through treatment--from the start (diagnosis). She also noted that the many links provide good information about many topics--she had spent time exploring some of them last night. It is rewarding to know that the information I have shared here is found useful to others--patients and medical health personnel as well. For your kind remarks, and for your continued encouragement and support to Michael and I, Thank You!
It seems that Dr. Glenn Deyo might have an opportunity to perform RFA treatment (if required--be there tumors) on either October 22 or 30. We will hope that it will not be required, but it is an incredible relief to know that he will be available to perform the treatment, if it is required. Michael and I have been distraught to think that another practitioner may have to perform the treatment--especially given that Dr. Deyo is with very familiar with Michael's very innards!
We will keep you posted! Enjoy your weekends, give a hug and kiss to the ones that you love! 2:30 p.m. Pacific time
BREAKING NEWS FLASH 2:50 p.m. Pacific Time! I had already loaded this up on the web, when I received breaking news! I had been on the internet, writing this update when my cell phone rang! It was Michael--he had a call from Dr. Deyo's office. Due to a cancellation, an appointment is available for us to meet with Dr. Deyo--today at 5 p.m. PT, AND the CT Scan Results are ready!!!
Boy does that cut out the nail-biting wait! Thanks for your thoughts and prayers, they are truly powerful.
I guess there will be another update later today. Keep us in your thoughts, and I will make an update later this evening after we get back from that appointment.
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Hello to All!
After the Breaking News Flash Update! We arrived at the office of Dr. Glenn Deyo today at 5 p.m. Because of the type of day they had had, they were just seeing patients scheduled for 4 p.m. We went for coffee at a nearby Expresso Stand.
A slight delay, but, let's face it--we were getting news today, that we would have had to wait till Monday to get.....
OK, so we are all ready for the punch line.
Dr. Deyo went over the results of the CT Scan with us--no new tumors! It bears repeating--NO NEW TUMORS! He had to confer with the St. Clare Radiologist--the knowledge that RFA was performed makes a big difference in the way that Michael's CT scan is interpreted! The CT scan reported that there were no new tumors in Michael's liver. We were so relieved, that "relieved" does not come close to describing how we felt.
Thank you for all of your thoughts and prayers; these results are miraculous, and we are grateful!
Dr. Deyo does not believe that the RFA treatment, in and of itself, is the reason for Michael's present condition. He reasserted his interest in the use of Artemisinin (thanks Sammy!!) and has asked that I document what Michael has been taking (compound and dosage, etc.). Michael has used the combination of Artemisinin that also has Artesunate and Artemether. I will write a whole page about what Michael has been taking (naturopathic and OTC) as potential reference for others in similar conditions.
We asked what we could be giving to Michael to improve his "healing process". Dr. Deyo named various items, and to an item, Michael has been taking such a regimen for several months. We were all glad. The regimen that Michael has been on includes several items not on Dr. Deyo's list--we will ensure their efficacy.
We will go to for a scheduled follow-up appointment with Oncologist, Dr. Lorrin Yee on Monday. This appointment will include a "port" (portable catheter) flush (required each month) and a blood draw for a CBC panel and a liver function test. The function of the liver is another "test" of Michael's condition. He is not yellow (a good thing)--which would be demonstrative of some level of liver dysfunction.
There simply aren't words...we are grateful for all your thoughts and prayers, for being added to the "Prayer Chains" in all of your churches, and for the generosity, demonstrated by people we know well, barely know, or don't even know...Thank you, and everyone you enlisted to "Keep Blair Alive"--it demonstrates the quote that I put on the Home Page:
| "A small group of thoughtful people can change the world. |
| Indeed, it is the only thing that ever has." |
| Margaret Mead, Anthropologist, 1901-1977. |
If you happen by Parkland National (127th and Pacific Avenue, just south of Tacoma in the area known as "Parkland") stop in and say "High" to Michael. Oh, what the heck, give him a big hug, in front of everyone! and let him know that you saw the website and are glad that the mission of "Keep Blair Alive!" has worked so favorably!!
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Hello to All! Hope this finds you and your family well, and set to begin the Thanksgiving Holiday with family, friends, loved ones.
Michael and I will be celebrating this holiday with friends in Florence, Oregon--sand dunes! We have been invited several years in a row, and decided that this year we would break from our long standing family tradition and go to the dunes!
Michael continues toward wellness. We had no illusions that when we were told that he had no tumors (October 16, 2003) that fact did not mean that he no longer had cancer--it simply meant he was currently tumor free.
We have continued trying to research and correct issues that were brought to our attention by Surgeon Dr. Glenn Deyo. Namely, why is the immune system not kicking on? etc. etc. I have continued research and have many more questions than answers.
We made the decision to begin work with a Nutritionist in hopes of improving that spectrum of Micheal. We have begun weekly sessions with Dr. Bob Erdmann and his daughter Ann Riner of Bioscience. They are helping with dietary changes and supplements. I highly recommend that you contact them for their assistance. If you do not live in the local (Washington State) area, contact Quantum Source 4 Life to find a certified EPFX/QXCI/SCIO Biofeedback Practitioner/Technician/Therapist near you.
Research in this area will keep one busy for many, many hours.
We were so impressed with the services provided by Dr. Erdmann and his team, that we recommended him to many of our friends, co-workers, family members, and now to you who are in wellness trauma. So, Diane, David, Chuck, Ken, Jerry have all made appointments and are new clients to Bioscience. [I guess our endorsement of Bioscience and bio-feedback services was well received. The list of friends and family members introduced to Quantum EPFX/QXCI has GROWN!! The list of those who are moving towards better health and wellness by using this Evoked Bio-Feedback service now includes: Chuck, Donna, Dave, Donna, Jenny, Mark, Diana, Diane, Bob, Steve, Jaime, Ken, Teri, Jess, Jerry, Lynn, Tami, Mike, Rita, Dave, Lydia ... and the list continues to grow! Find out what they have learned, contact Quantum Source 4 Life to find a certified EPFX/QXCI/SCIO Biofeedback Practitioner/Technician/Therapist near you]. If you live in the area and decide to contact them for services, be sure to mention that you heard about it from the "Keep Blair Alive" website. Just do it!
We have also read and learned many new things that impact the lives of cancer patients. I highly recommend the works of Dr. Hulda Clark, particularly her cancer works, as well as associated Clark and Self Health Resource Center products, "zappers", etc. for cancer patients. Believe me, when you start doing research in this area, you are in for a ground swell of all kinds of information covering many far reaching topics. Whew!
We have known for a long time about the connection between sugar and cancer. Modifying Michael's diet, in an attempt to make him a less attractive human being for cancer to live in has become one of our many new challenges. I read and recommend the works of Dr. Mercola, whose diet bears great similarity to Dr. Atkins diet, with some twists. Basically, we are graduating to a no-grain, carbohydrate free diet to prevent Michael's body from producing needless sugar, which are in turn provides free food for cancer cells.
Ridding the body of sugar has implication not only for cancer patients, but for diabetics as well. "Sugar Blues", a great book on this whole sugar topic is available through Amazon.com. Another good read.
Michael's next CT scan is scheduled for December 16, 2003. We will meet with Dr. Deyo afterward and learn whether Michael has remained tumor free.
Well, that wraps this session up! Thanks for visiting our website, be your first champion and do research for your wellness!!!
Thank you to those who have sent us cards, e-mails, thoughts, prayers. We have and continue to appreciate all your support, Thank you.
Happy Holidays to all of you. Take time out for yourself (you deserve it) and be sure to let your loved ones know that they are loved.
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Hello, to all! Hope this finds all of you well!
We have great news to share today! Michael had his CT scan this morning and we went over the results with the Surgeon Dr. Glenn Deyo during our appointment late this after noon.
For the second consecutive time, (4 months after his last Radio Frequency Ablation surgery in August, 2003) Michael continues to be cancer-tumor free!!
We were so grateful for the news. The good end of the continuum (no new tumors) always takes care of itself. But we would have had to make preparations for the bad end of the continuum (if tumors had been found).
So, we are free to enjoy the holidays, and will begin in earnest to prepare to celebrate "the reason for the season".
At Dr. Deyo's request, certain specific diagnostic blood tests will be run, including a CBC, Liver function test, an Iron panel. An additional one is going to be run, to start gathering data in support of the use of Artemisinin.
Dr. Deyo continues to be amazed--that Michael has survived, and that he is doing so well. Particularly in light of the shear number of "hits" (colon cancer that had metastasized to the liver and developing into rather fast growing, large tumors) that developed in the liver.
We actually discussed increasing the amount of time between CT Scans. Currently, they are being done every 8 weeks. If Michael's next CT Scan (Feb 4, 2004) once again comes out "negative" (no new cancer tumors), then the following one will be spaced out a bit further.
After our appointment, Michael and I made a number of phone calls (to share the news) and went out to a nice meal.
His wellness program now includes Dietary and Nutritional support from the team at BioScience. This was an incredible addition to Michael's wellness program. We were so pleased, we shared the information with others, and (to date) Chuck, Diane, Dave, Ken, and Dale have also begun working with BioScience. Donna, Bob, Donna, Ann Marie, Jerry, Mark, Brett intend to begin right after the first of the year.
Want to add this service to your wellness program? Contact Quantum Source 4 Life to find a certified EPFX/QXCI/SCIO Biofeedback Practitioner/Technician/Therapist near you.
To date, we have provided references to folks living in Washington, Arizona, California, New Mexico, Ontario, Florida as people just like you have contacted us through this website. We wish all of you wellness
We can not thank all of you enough for your support throughout our saga. We are truly grateful for the e-mails, cards, letters, emotional and financial support you have extended to us.
From ours to yours, please enjoy the holidays! Take time out for yourself (you deserve it) and be sure to let your loved ones know that they are loved! Happy Holidays!!
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Hello, to all! Hope you and yours are well, and set to enjoy the Holidays with family and friends.
We have much to be thankful for--Michael is alive and able to enjoy the Holidays with us.
Daughter Hilary is visiting from Boston, and we are very glad she is able to enjoy the holiday with us.
Michael had a recent blood test (December 16). Several of his counts (white and red blood cells, amongst others) were out of range--low. It was decided that the ones relating to the white blood count were low because on the day the test was run, Michael had begun coming down with a flu virus. Fortunately, it was not a strong one, he "zapped" everyday and he was better within the week. No, he has not had a flu shot. It is generally recommended that he not get one as his immune system is still suppressed and he could get very, very sick if he gets one.
Regarding the red blood cells....The numbers remain low and additional tests have been run. We may get the results back today. Red blood cells are made in the bone marrow. Michael has had colon cancer, colon resection, chemotherapy, and Artemisinin therapy. The colon resection led to impaired absorption of vitamins (including Vitamin B6 Pyridoxine, B9 Folic Acid, B12 Cobalamin) and minerals through his intestinal tract. The chemotherapy destroyed his immune and other support systems. The Artemisinin therapy, while killing the cancer cells, reduced the level of stored iron in Michael's system.
As a result of all of this, the production of red blood cells has been reduced, and Michael continues to show signs of overall fatigue and anemia, triggered by improper absorption of Folic Acid and Iron.
When I spoke to the doctor (Dr. Glenn Deyo), yesterday, he indicated that he will investigate the issues of the red blood cells, and may have to run tests on the bone marrow, after the first of the year. Meanwhile, Michael is now taking a tablet (under the tongue) containing Vitamin B6, B9 and B12, in hopes of boosting the production of red blood cells and reversing the anemia decline.
Dr. Deyo will order a chest x-ray for Michael in early February, along with the CT Scan and blood tests.
We will keep you informed as there is news, about test results, etc. Thanks, so much for all the thoughts, prayers, kindness and support you have shown us. We are truly grateful.
That is about it, on this Christmas eve.
We wish you and yours a Happy, Safe, Peaceful holiday! Be sure to let your loved ones know that they are loved.
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Hello! to all!! Hope this finds you and yours in good health, or improving. We realize with all the communication we are getting from around the world that many of you are in health trauma. Know that you and your loved ones will be kept in our hearts and prayers. Join us in thoughts and prayers for Jess, Diane & Diane, Gayle, David, Connie, Lawrence, Chuck, Linda's Dad, who are dealing with health crisis, or loss, and the countless others who are struggling for their very lives.
Michael went in early this morning for his CT Scan, Chest X-Ray and blood work. We met with Dr. Glenn Deyo at 5:30 p.m. to discuss the results. Neither the chest X-ray nor the CT Scan showed any evidence of cancer tumors! To date, Michael has remained free of cancer tumors for six straight months now!!! Dr. Glenn Deyo indicated that one tumor site was actually smaller, most likely due to shrinkage. This is most excellent news!!! and we are grateful. Thank you to all who have shared their personal stories with us--from Wales/UK to Florida to Ontario! and everywhere in between. We appreciate your thoughts, prayers, generosity and support during this time.
We have been notified that Michael's story will be featured in an upcoming article to be published by St. Clare Hospital!, and possibly by a regional radio station! We are overwhelmed by the level of support shown to us. From the bottom of our hearts, we thank you! Stay tuned, I will write more soon, but I have been up for 19 hours and frankly, I am beat. Michael went to bed quite some time ago.....I plan to go join him now (he is wearing me out!)
Be sure to take time out for yourselves--particularly the caregivers! It does our loved ones no good for us to get run down....I should talk. Be sure that your loved ones know that they are loved and share what you know about health and wellness with someone else--it might be your turn next. Goodnight! 10:30 p.m Pacific Standard Time.
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Hello everyone! Hope this finds you and yours well.
Have your hummingbirds come back yet? Ours have just returned! The unmistakeable sounds of their buzzing and wings was heard on Sunday--feeders went up yesterday (Monday). I witnessed a constant stream of activity at the feeder for the remainder of the day! Spring has begun its return to the Pacific Northwest.
Michael goes in to the hospital today to have his portable catheter removed. He has made the decision, that no matter his health condition, he will never take chemotherapy treatments again, so, he is having the portable catheter removed from his upper left chest. This surgery will be performed by Dr. Glenn Deyo at St. Clare Hospital in Lakewood Washington. Removal of the porta cath paves the way for Michael to participate in jeep racing activities during this season!!
We are to arrive at the hospital at 10 am--surgery to follow. We will keep you posted.
Michael and I met with Dr. Deyo yesterday afternoon for a pre-operative appointment. During the course of that conversation, I asked what Dr. Deyo thought about Michael's prognosis. He indicated that he is guardedly optimistic--he continues to be amazed that Michael is alive, and that his liver function tests, blood work, etc. has settled into the "normal" range. It is noted that Michael is still slightly anemic--we took him off iron supplements last year when I learned that the iron he took to stave off anemia was merely providing a food supply for the cancer tumor cells.
Blood work will be drawn in preparation for the 60 day followup--scheduled for April 7, 2004.
There is to be a "slight" change in the followup protocol. If the insurance company will cover it, Michael will have a 3-D CT scan of both the liver and the colon. This latest innovation for diagnostic work will enable Dr. Deyo to get a better picture of the present condition of Michael's liver and colon. We will meet with Dr. Deyo and get results from the blood work and CT scan on April 7.
Dr. Deyo informed us (August 2003) that should Michael survive to August, 2004, then he intends to submit a paper regarding Michael's case to medical journals. It is quite rare for a person to survive what Michael has been through and Dr. Deyo intends to make Michael's case public. It may very well provide hope for other colorectal cancer patients. We will keep you posted!
Of course, the surgery was successful! See the photos. Michael plans to go back to work tomorrow. He is experiencing some pain and pressure in the upper left chest, but is very happy to be "port-less"!
Our thanks to each and every staff member of St. Clare Hospital, Lakewood Washington for Michael's continued care.
Next medical event facing Michael? The 3-D CT Scan of the liver and colon scheduled for Monday, April 5, 2004--with results on Wednesday, April 7, 2004. Remember that on April 9th, 2003, Michael and I were informed that he would not survive more than 6 months IF he took chemotherapy, perhaps two months if he refused. This is quite a milestone that Michael has survived and we are grateful for all of your thoughts and prayers on our behalf.
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Hello to all! We hope that you and yours are well, or at least improving. Our thoughts go out to the families and friends of those who have recently lost loved ones.
Michael recently went through a new imaging experience and we want to share the results with you.
From the beginning of our saga with cancer, we have known the inadequacy of typical CT scans--cancer tumors must be large--at a life-threatening stage before they are picked up on standard CT scans. AND, the radiologist must be able to "read" the scan accurately for an accurate diagnosis. This part has been frustrating for us (and others) from the beginning.
Michael went through the two-day "prep" regimen in preparation for the Monday morning scan. Each time he is forced to go through this, he is left somewhat weakened as he experiences diarrhea, dehydration and a certain amount of weight loss. Michael now weighs a scant 174 pounds.
We were referred to CDI in Federal Way (Washington State, USA) for the 3D scan and reconstruction of the liver and colon. The results were written and recorded and we reviewed them with Dr. Glenn Deyo on late Wednesday afternoon (April 7, 2004). The news is troubling and definitely not good.
Michael was found to have various tumors, as follows:
one tumor in the lower left lobe of the lung; (it was apparently visible on the April 2003 CT scan--we were not informed of its presence)
one tumor in the liver; (it was apparently visible on the February 5 2004 CT scan--we were not informed of its presence)
one tumor "in the pelvis" (most likely near the place in the colon where the colon resection was performed in March 2002);
and "numerous nodules in the mysentery of the peritoneum".
Again, this news is troubling and definitely not good.
In our conversation with the Dr. of radiology who made the report, we were informed that the tumor in the lung had been present in the CT scan performed at St Clare (April 2003). Its presence was not brought to our attention. The doctor went on to indicate that this tumor is "a slow growing, stubborn growth".
The tumor in the liver is undergoing further review against CT scans performed in October, 2003. It appears that (due to its location) either it was entirely missed during the RFA treatments (April, June, August 2003) or that it is regrowth from a tumor only partially ablated during one of those RFA procedures. It was noted that this tumor is fast growing--aggressive and appreciably larger than noted in the CT scan of February 5th, 2004--again, we were not made aware of its prescence during our review of the February 5th, 2004 CT scan.
The tumor in the pelvis is quite troubling. We knew from the beginning that recurrence of tumor growth at the original surgery site is incredibly common--but prayed that that would not be Michael's fate. More investigation work will be required regarding this tumor. A colonoscopy has been ordered and the exact location and nature of the tumor will be established.
Additional research will have to be done regarding the "numerous nodules in the mysentery of the peritoneum" as well. The radiology Dr. from CDI indicated that it may merely be lymph nodes in the area--quite common. It may be more sinister--as in cancerous lesions located throughout the body cavity--laying on top of the small bowel. Again, more investigation is required.
We are bereft to learn of these developments--particularly since the tumors were present during prior CT scans.
We are not entirely without hope. We know that what we have been doing (self-administration of Artemisinin and "zapping") has kept Michael alive. He looks good! and all of his blood work continues to be within normal limits. Only the white blood cell count and hematacrit numbers were slightly off.
We asked Dr. Glenn Deyo what he would do, if he had received this informaiton about his wife Ann, to which he replied that he would "keep his head down and keep driving". That is precisely what we intend to do.
I asked Michael if he wanted to continue to fight, and he indicated that he is not done--the fight will continue.
As we have more information we will share it with you.
Be sure to take time out for yourself--you deserve it--and we will keep you posted.
Thank you for your continued thoughts and prayers--we are grateful for the support.
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Hello to all! Hope you enjoyed your Easter weekend activities!
We took a mini-vacation and went to Las Vegas to celebrate the fact that Michael had survived one year past the date that he was diagnosed with non-survivable colon cancer that had metastasized to the liver.
We visited with my parents and their friends, visited a few of the casinos, did a bit of gambling, grabbed a few rays of sun--and are grateful that Michael is alive.
The time-off was unfortunately somewhat tainted by the news that we received from Dr. Glenn Deyo on Wednesday, April 7th.
Upon our return from our trip to Vegas, Michael did the one-day prep work for the 7 a.m. colonoscopy (Friday, April 16, 2004). He has lost 10 pounds doing these cleanses--and now weighs only 165 pounds.
We met with Dr. Michael Priebe (Tacoma Endoscopy Clinic, Tacoma) afterwards and were informed that Michael has a tumor in the colon at the site where the colon had been re-sected. From the beginning of our saga with cancer, we knew that recurrence at the surgery site (anastamosis) is common, it is devastating that it is true for Michael.
The tumor is a very aggressive one--in just 16 months it developed from inside the colon, broke through the wall and is now outside the wall of the bowel. So far, it has not restricted the passage of material through the bowel, but in the photos taken durng the procedure, the surface "lump" of the tumor is clearly visible inside the bowel.
So, today, we know that there is a tumor in the colon (where this all began) there is a tumor in the liver, and a tumor in the lung, possible tumors in the mysentery of the peritoneum. Decidely poor news, overall.
We will be meeting with Dr. Deyo on Monday at 1:30 p.m. to discuss options, and have our standard follow-up appointment with Dr. Lorrin Yee (Oncologist) on Wednesday April 21, 2004.
Michael and I will be leaving to go to Mexico (following Dr. Hulda Clark's suggested dental ware cleanup for his dental work later in the week. We plan to have all toxic materials removed from his mouth (toxic dental mercury, root canals, etc.) in an effort to remove toxic dental material which continue to burden his immune system.
It is truly a shame that we have to leave the United States, our homeland, to get adequate dental care. We made the decision to work with dentists/clinics that were specifically sanctioned by Hal Huggins (Colorado Springs, Colorado), a very vocal supporter of dentistry without toxicity. Read more about this troubling topic on the dental page
While in Mexico, we hope to connect with Naturopathic Doctors who may assist us with Michael's health picture. It is not very encouraging at this writing and we hope to learn what else we might do to improve Michael's prognosis.
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Hello to all! We have health update information to share with you as a result of recent procedures and doctor appointments.
We met with Surgeon Dr. Glenn Deyo, Lakewood on Monday afternoon, April 19, 2004. Because we had spoken to Dr. Michael Priebe at Tacoma Endoscopy, we knew the results of the April 16 2004 colonoscopy--there is a tumor in the colon at the site of the colon resection (anastamosis). We talked to Glenn about treatment options on Monday.
Glenn had apparently planned to perform a fourth RFA surgery for Michael's liver on Tuesday, April 20, but in light of the discovery of a colon tumor at the site of the anastamosis, a different treatment plan was discussed.
We had understood from our conversation with Dr. Serra (Center for Diagnostic Imaging, Federal Way, Washington) that there was a single tumor in the liver. Glenn reviewed the 3D CT scan with Dr. Serra and that number has been revised--there are currently four tumors in the liver. Because of their position, they collectively present as a single mass, but are distinct separate tumors located in the same general area. So, the total list of tumors is: four in the liver, one in the colon (at the anastamosis resection site), one in the lower left lobe of the lung and "various nodules" in the small bowel mysentery of the perioteneum.
Many things "could" be done:
Lung. RFA or resection for the lung tumor is, apparently of the least concern. A needle biopsy was considered to determine exactly what cancer was present. The tumor was described as a "slow growing, stubborn growth".
Liver. RFA of the liver could be done. Glenn felt that a different surgeon could be asked to perform this procedure as he (Glenn) was better suited to perform surgeries on tumors that were situated peripherally, and tumors in Michael are situated more internally/centrally.
Mysentery nodules. These would require investigation. Open Michael up, discover what they are and decide what, if anything could be done. Perhaps they are merely lymph nodes. Perhaps they are not. The old story of opening a person up, potentially discovering that the nodules are cancerous and have spread throughout the body cavity. Closing up and sending the person home to die. Grim.
Colon tumor. There is not enough bowel left to disconnect and reposition. The resection is only about 4 inches up from the anus. The entire large intestine could removed, attaching the small intestine to the area. This would assure that Michael would be plagued with diarrhea etc. for the rest of his life.
The misery of death associated with each of these tumors was also discussed. Death from complications associated with the intestine was thought to be the worst--and perhaps the most immediate. A blockage in the flow of material through the large intestine would cause peritonitus, sepsis, etc. It would be painful--and would force Michael into the hospital to spend the remainder of his life. To keep the bowel "open" a shunt could be "installed" to ensure that material could move through the area for some period of time.
Death due to liver failue, we were told, would be less painful, would progress more quickly. Michael would become increasingly more tired, and would ultimately go to sleep--and fail to awaken.
In the end, Michael and I decided that he will not elect to have any more surgery. He is in good spirits, continues in otherwise good health and what time remains for him should not be spent in the hospital, roaming from procedure to procedure.
We asked to address pain issues. I do not want to watch the pain shining out of Michael's eyes--he has been through enough pain and I don't want him to endure any more. Glenn felt that oncology personnel should be consulted regarding this issue. We will meet with them on Wednesday afternoon.
We discussed our plans to travel to Fiji with friends (late May), SCUBA diving lessons, etc. It was decided that a shunt should be placed in Michael's colon (early May) prior to our Fiji trip and Glenn felt that past procedures performed on Michael do not preclude him from participating in SCUBA classes. So, we are continuing with our plans for SCUBA classes and for our trip to Fiji.
That pretty much sums up our conversation with Dr. Glenn Deyo.
We met with Dr. Lorrin Yee of Hematology Oncology Northwest on Wednesday afternoon (April 22, 2004).
He spent what we consider an inordinate amount of time trying to convince Michael to take radiation and chemotherapy treatments. Repeatedly we told him that chemotherapy did not work for Michael, made him sick, weak, unable to eat, tired, nauseous, vomitous,.....well you get the picture. Forget it! Michael shall not undergo that hell again. If I had only got on the internet and done some research about chemotherapy and how it ravages the body--Michael would never have been subjected to it last year. We have nothing positive or supportive to say about chemotherapy. Do your research well, do it thoroughly before you subject yourself or someone you love to any form of chemotherapy. Lorrin continued to discuss various "new" drugs that could be taken in conjunction with 5FU--2 new "drugs" have been added to the horror list of chemo drugs for colon cancer victims. Some of this "new" protocol and treatment can be found at e medicine. We decided to continue to reject any further chemotherapy treatments for Michael.
Hospice was discussed. Finally, Lorrin got through his agenda of pushing chemo and radiation and we got to discuss what we went there to discuss--Pain, and what to do about it for Michael.
It appears that when Michael begins going through the painful process, he gets to start with low level doses of low level pain controllers until he is allowed to use the right drug at the right dosage.
We told Lorrin what has worked for Michael and what we want. Prescriptions for the drugs that work at the dosage Michael needs. We finally left with prescriptions in hand for pain medication.
Whew! we sure don't wish this process on anyone else!!
Get tested! don't become a victim of colon cancer!! Do it, get tested, do it today!
As usual, Michael went back to work after our appointment.
When he arrived home, we began to pack for our trip to San Diego, and for our first SCUBA pool session later today.
We scheduled dental treatment for Michael at the clinic in Tijuana, Mexico (Saturday through Thursday). We plan to have all metals (including root canals) and all dental mercury removed from Michael's mouth. Basically, if you have purchased your copy of Dr. Hulda Regher Clark's
books, the process we are embarking on is detailed in the section under "Cleaning up your Dental Ware".
You see, we have not given up that Michael may beat this thing. 7,000 people survive colorectal cancer each year (out of 157,000 diagnosed). We want Michael to be one of them. We have tried all the standard Western style medical treatments--and Michael has managed to survive them. We must continue other forms of treatments that are not openly sanctioned by American Federal Agencies. And so....we are off to Mexico.
We sent Michael's blood serum and hair samples out for "Biocompatibilty Testing" to discover what dental materials could safely be put in his mouth when the dental mercury is removed. After much research, we have decided to follow the dental protocols set out by Hal Huggins (Colorado Springs, Colorado) in combination with those proposed by Dr. Hulda Clark. We were advised that there were three options if we wanted treatment for Michael--go to Colorado Springs, go to Canada or go to Mexico. Mexico is the best option for us.
Do you know what dental material is in your mouth? If you have "silver" filings, you most likely have mercury in you. Do you have a root canal? Then clostridium bacteria is probably leaching into your body through your jaw bones. Do the research yourself and consider switching to dentist who refuses to place toxic materials in your mouth--no root canals, no caps, no metal, no mercury. Visit the dental page.
I think that about wraps up this health update.
Thank you to all of you for your thoughts, prayers, support. We sincerely appreciate it!
Be sure to let the ones that you love know that they are loved! Take time out for yourself, you deserve it! and we will keep you posted.
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Welllll...........Sorry for the delay in providing an update.
I apologize that our lengthy silence has worried many of you. Be assured that, as of this writing, Michael is alive and doing well. We thank you for your continued support, thoughts, prayers, phone calls, e-mails, etc. Thank You!!
There is so much to share that a mere "Health update" simply won't capture nearly three months worth of information.
When they are written you will find more about these topics:
Health issues
Fiji vacation
Cabos vacation and "Congress of the Masters" training EPFX/QXCI/SCIO
The most recent medical report (April 22, 2004) totally knocked the wind from our sails--I was unable to write anything here for months. We had not given up, but decided to go on vacation--Repeatedly!!!
Sonja Tolbert (of WorldMark, The Club--Trendwest) told us about Dr. Mel Borins, M.D., author of the book entitled "Go Away: Just For The Health Of It!". Dr. Borins is a leading authority on complementary and alternative medicine and a foremost propoenet of the health advantages of timeshare vacations. In his book he writes about the medical benefits of vacation! We took that maxim to heart and did just that--we went on vacation for Michael's health, continuing to accomplish items from Michael's life list.
Since the last update (April 22, 2004) Michael has:
completed all pool and open water dives leading to 1st level open water dive certification (April 20 through May 9th).
Michael and I had both completed dive certifications, before we had even met (late 70's). When we finally made the decision to travel to Fiji with our friends Dave and Donna Rink, we ultimately made the decision to take open water diving classes in preparation for our trip to Fiji. We highly recommend that you consider completing your training through Scuba SET in Federal Way, Washington--they have an excellent, well trained staff; an on-site pool for practice and all four of us managed to get certified with the collective help of the Scuba SET staff. There was a great combination of teaching styles--traditional classroom lecture; in-the-pool demonstration and practice of skills; open water diving. What a great experience! Dr. Glenn Deyo felt that it would be okay for Michael to participate in open water diving--we were grateful that Glenn had been a diver so he was able to make that determination for Michael. Pictures to follow.
travelled to Tijuana Mexico to have all dental mercury/root canal removed/replaced (April 23 through 29).
The decision to remove all metal and mercury from Michael's mouth was a good one. Michael's overall health began to improve with the removal of all metal and mercury. We are grateful for the services of the entire staff of the
American Bio Dental Center, Tijuana (Baja California, Mexico) for their professionalism and quality dental service. Once you have decided to accomplish your own dental work as a part of your wellness program, consider utilizing the services of the American Bio Dental Center. Staff members follow the Hal Huggins protocol regarding mercury amalgam removal and we were so pleased with their service, that we do not hesitate to recommend them to you. When you contact American Bio Dental Center, be sure to tell the person who takes your call that you heard about them from Michael and Kathy Blair,here on the "Keep Blair Alive" website. Pictures to follow.
While we were away, some one got into our garage, where the race jeep is stored. Upon our return, we discovered that the race jeep was race-ready!!! The culprits? Dennis and Denny Martin, Randy Tipps and Keith Peterson. As a continuing part of the green tape joke, Dennis and Denny put green tape notes all over the frame and other parts of the jeep. Some sayings are too raunchy to repeat here, but some were quite cleaver/cute! "Get me out of this garage--I want to go racing!!" "Put gas here and take me racing!!" You get the idea, Dennis & Denny, Randy and Keith got Michael's race jeep race-ready. So, Michael and I will participate in the next jeep race (Webfooters playday!).
received hyperbaric oxygen treatments (April and May during trips to Tijuana Mexico).
The American Bio Dental Center is located inside the Grand Hotel, in Tijuana Mexico. Also located in this facility (just down the corridor) are many health and wellness businesses. Michael had Hyperbaric Oxygen therapy on various occasions while we were in Mexico for dental work. Pictures to follow.
Contact Oxigenoterapia Hiberbarica Mexicana (or an oxygen hyperbaric chamber service near you) to explore this therapy.
For more information about Hyperbaric Oxygen Therapy, do an internet research on this topic.
Google Search Engine: Hyperbaric Oxygen Therapy
Here are just a few resource links:
Neubauer, Richard A. & Morton Walker. "Hyper Baric Oxygen Therapy: Using HBO Therapy to Increase Circulation, Repair Damaged Tissue, Fight Infection, Save Limbs, and Relieve Pain"
McCabe, Ed. "Flood Your Body With Oxygen"
Dr. Cranton.com "Hyperbaric Oxygen Therapy" http://drcranton.com/hbo.htm
participated in the Webfooter Play Day (May 1st and 2nd).
What an incredible weekend! Thanks to the generosity of Dennis & Denny Martin, Randy Tipps and Keith Peterson, the race jeep was race-ready and Michael was able to race the jeep for the first time in the 2004 season. The race jeep had a few issues, but Michael had a great time and it was awesome to see him participating again. As new members of the Webfooters jeep club (we continue to be members of the Skookumchuck Mud Daubers), we helped sling hamburgers and performed other duties as required in the famous "Cook Shack". You simply have not experienced a truly great race-burger until you taste one prepared by members of the Webfooters (and friends like Gail Burch and Jimmy Rotter who help make the event a success)! Be sure to try one at the next Webfooter playday!!
completed the "21 day cancer detox protocol" as outlined in Dr. Hulda Clark's work entitled "The Cure For All Advanced Cancers" (May 3 through 26--give or take).
Michael began the program in early May, and he had nearly completed the 21 day cancer protocol when we arrived in Fiji. He was so miserable, trying to finish up the last remaining days, that it was decided that he should abandon the last few days of the protocol in favor of enjoying Fiji. I plan to provide additional remarks/observations, etc. about the protocol--stay tuned....
travelled to Boise, Idaho to meet his new granddaughter (Olivia Rae Evaro) and visit with her proud parents Allison and Randy (May 14 through 16).
Michael and I a hopped on a plane and flew to Boise, Idaho to visit with daughter Allison and son-in-law Randy Evaro. They are the proud parents of Olivia Rae Evaro, who was born just weeks prior to our vist. It was a real emotional thing to see Michael with his granddaughter, since the odds of his surviving colorectal cancer were so incredibly poor.
We had a wonderful weekend with Al & Randy and baby Olivia! The weather was beautiful and we went downtown and enjoyed the open air market. Pictures to follow.
participated in the annual Propeller Club fundraiser "Chow Down" at the Port of Tacoma (May 21).
The night before our departure to Fiji, Michael and I helped our friends Dave and Donna Rink with their fund raising efforts in support of the Propeller Club (Tacoma, Washington). We were primarily responsible for selling Raffle Tickets. What a whirlwind event that was--just the day prior to our departure on an incredible vacation.
Last summer (August, 2003) Michael's namesake (Michael "Mike" Rink) married a beautiful young woman named Jenny. The wedding was held the day Michael Blair got out of the hospital after his third Radio Frequency Ablation liver surgery.
Prior to the wedding, Donna Rink was doing research on the Internet regarding wedding arrangements. She saw a "pop-up" ad regarding a contest for those involved with weddings. Historically, any contest that Donna has entered that involved her son Mike, she usually won.
And so it was that Donna Rink won a trip of a lifetime for two to Fiji.
The contest was co-sponsored with Seattle Washington's King 5 Television and Trendwest (Worldmark, the Club). The promoters attempted to contact Donna many times to inform her that she had won. She refused their calls, thinking it was some sort of promotional scheme. Nope!! She had won and received the certified letter to prove it. She finally believed and understood that she and husband David were going to Fiji!!!
Michael and I had been on many trips--satisfying his need to accomplish his life list, and to be on vacation for the health of it. David and Donna accompanied us on most of those trips--wherever we went. So it was that we sort of invited ourselves to go along on their trip to Fiji. They had decided to go in late May through early June (2004). We subsequently learned that Michael's health situation was too precarious to plunk down tons of money for the trip, not knowing if he would be alive to go!
Time passed, and it became February, 2004. Michael was alive, and it appeared to us that he would remain so. Donna remarked to me that "Michael is alive, he is going to be alive--get your money out and let's go to Fiji!!" We began making travel arrangements, securing accomodations for the remaining days to extend our stay in Fiji, arranged SCUBA diving lessons, and all the other myriad details to prepare for the trip of a lifetime with our friends.
The other shoe dropped in April, 2004 when we learned that all was not well with Michael's internal organs.
We discussed all of this with Dr. Glenn Deyo during our April appointment--and continued with our plans for travel to Fiji.
The day finally came and we left Sea Tac airport, bound for Los Angeles (LA), California, U.S.A. We made our connecting flight (11 hours!!) and landed in the paradise known the world round as Fiji.
Because we slept all the way over (sort of) when we arrived at 5:30 a.m., we had had a nights sleep and were ready for the day. We hooked up with a great taxi driver (thanks Mole--pronounced Molly) who subsequently was our driver throughout much of our stay in Fiji.
What ensued for the next two weeks was a story-book version of a vacation in paradise. We snorkeled, swam in the ocean, swam in the pool, SCUBA dived, met many new friends from around the world, participated in local traditions, went sight-seeing, ate, drank and enjoyed ourselves for just about two weeks. And we were well taken care of at the resort by Manager Frederich Becker and the entire staff of WorldMark Trendwest and the entire staff of Dive Tropex on Denarau Island in Fiji.
Now that I have gotten back into the swing of writing here, and our lives have calmed down a bit, I will finish our tale of Fiji, including pictures, as I have time.
Suffice it to say that Michael stayed alive--he was well the entire vacation. We had a wonderful time and would not hesitate to recommend to you to go, visit Fiji, stay at Trendwest and dive with Dive Tropex. You will surely agree what a wonderful time it is.
appeared on the 10 p.m. KCPQ channel 13 news (Thursday June 10th) and re-aired on the 9 a.m. news (Friday June 11th) during an interview about making and accomplishing your life list and surviving colon cancer.
Michael and I were interviewed by John Yaeger of KCPQ channel 13 for 90 minutes on Thursday June 10th, 2004. That same night, we were featured on the 10:00 p.m. news during a three-minute segment. It was exceptionally well done and brought tears to the eyes of many who caught it. We had phone calls/e-mails/notes from many people after the airing. Our website access rose from 1 hit each hour--24/7 to an average of 12 each hour--24/7.
We meant the segment to encourage a sense of hope, and to provide a source of courage for others who are in similar circumstance as Michael. It was also meant to encourage people to make and accomplish a "life list"--what do you want to have accomplished before your time is over? Make a list, and get the items accomplished--there is no time like NOW! [smile].
John Yaeger captured that message exceptionally well, and we were proud to have been able to pass on this message through the medium of television. Pictures/Video to follow. If I can find out how to upload the three-minute segment you will be able to access it here.
travelled to Tijuana Mexico (Kathy and Chuck had their dental mercury/root canal removed/replaced) (June 20 through 27).
Chuck, daughter Jaime, Michael, myself and daughter Hilary all travelled to Tijuana Mexico for Chuck and myself to get our own dental work/mercury/metal removal replacement work accomplished. Michael and the girls got some play/sun time while Chuck and I were flat on our backs in the dental chair each day. My Spanish is improving a bit--each time we make our way to Mexico. Consider having your dental work accomplished by the competent, professional, friendly staff at American Bio Dental Center, Tijuana (Baja California, Mexico)!!!
While we were in Tijuana, we met an incredible accupressurist named Johnny Jensen. He was at the Dental Center and some of us had an opportunity to experience his healing power of accupressure. While Chuck just felt pain, and not much relief, the session I received provided me an incredible increase in range of motion for walking up and down stairs--without the use of a handrail!! Incredible. Michael and I each received several sessions during our week long stay and we will try to arrange future sessions on return trips to the Dental Center. You may contact Johnny Jensen through the Dental Center should you decide to arrange accupressure sessions.
I sent an e-mail to a friend (the technician who provided Michael and I with biofeedback sessions until we bought our own machine) outlining our plans to go to Mexico for dental work (June 20 through 27). She remarked that it was too bad that we could not extend our stay in Mexico and attend a conference in Cabos San Lucas the following week. The conference was to feature EPFX/QXCI/SCIO inventor Professor William (Bill) Nelson and Dr. Debi Drake who would present information about using the EPFX/QXCI/SCIO device to identify and reduce body stressors associated with many ailments, including cancer. After agonizing over the decision about going--or not, we modified our travel arrangements and went to Cabos San Lucas, Baja California Mexico.
What an incredible 5 days that was!!!
Michael, for all intents and purposes, was on another health vacation!!! He lounged by the pool, went for daily walks, travelled to downtown Cabos. He did most of this on his own, because I attended the daily conference and filled my brain to capacity, learning everything there was to learn about how to use the EPFX/QXCI/SCIO biofeedback device to help others identify and reduce body stressors.
What a phenomenol week that was. We meet many people from around the world--some were doctors, chiropractors, healers, counselors, dentists, biofeedback technicians/therapists/practitioners, etc. But all of them were involved with the biofeedback service provided by the EPFX/QXCI/SCIO. When Dr. Debi Drake was providing information about the use of the EPFX/QXCI/SCIO for cancer patients, she demonstrated the associated protocols to the 50 attendees--using Michael as the subject! I was operating the EPFX/QXCI/SCIO, upon her direction, with Michael hooked up as she demonstrated how she would approach working with a client such as Michael. Because I was unable to take any notes (I was, afterall "at the controls") I have subsequently been provided a DVD version of the entire session. It will help me to modify the use of the EPFX/QXCI/SCIO for future sessions with Michael. What an incredibly serendipitous experience!
I did not do any sight-seeing, being wrapped up in attending the conference every day we were there. I was grateful for the opportunity to "meet the maker" Professor Bill Nelson, Dr. Debi Drake and all of the staff members of Quantum Alliance who put on the conference.
After we got home--I had one day to clean clothes and pack because I left on Sunday, July 4th (aboard the Victoria Clipper) bound for Victoria British Columbia (BC) Canada for seven 8-hour days of training in the use of the EPFX/QXCI/SCIO biofeedback device.
Prior to that time, all my training in the use of the EPFX/QXCI/SCIO biofeedback device had been on my own, with a few hours of training provided by a Clinical Nutritionist. Now, I have passed my first level certification as a Certified Biofeedback Technician and have amassed nearly 100 straight hours of training in the use of the EPFX/QXCI/SCIO biofeedback device. WHEW!
There were 40 people in attendance at the training session sponsored by Quantum Alliance in Victoria. There were various doctors, chiropractors, dentists, healers, massage therapists, counselors and others who will be biofeedback technicians/therapists/practitioners. The group was split in half and two different instructors (Alyce Harms and Dave Cowan) alternated between them during our seven days 7 hours per day training sessions. It was phenomenal and I forged many new friendships with people from all over Canda and the U.S.A. I highly recommend the training to any of you who may be considering it. It was a great opportunity.
continues his bi-weekly (twice a week) EFPX/QXCI biofeedback treatments here at home (February to date and continuing).
Michael's current therapies for surviving colorectal cancer (that has metastasized to the liver, lung, small bowel mysentery) includes the continued use of the EPFX/QXCI/SCIO biofeedback device, taking herbal supplements, performing various cleanses (liver, kidney, enemas, etc.), removing dental mercury and all metal in the mouth (root canals!), detoxifying heavy metals (some of that came from all the diagnostic procedures that he has had to do!!!) and mercury.
Michael has not had "medical" intervention since the removal of the portable chemotherapy catheter earlier this year. The most recent medical therapy that he had was the August, 2003 Radio Frequency Ablation (RFA) surgery to the liver.
So....
We credit his current survival to his continued positive mental attitude, the power of prayer, the continued use of the biofeedback available with the EPFX/QXCI/SCIO, dietary changes, herbal supplementation, cleanes, and oxygen therapy--as Michael is otherwise not receiving any other therapies.
Many others have begun their own wellness ventures, using biofeedback available with the EPFX/QXCI/SCIO including Diana, Mark, Ann Marie, Humberto, Mike, Jessica, Ken, Teri, Vicki, Ted, Rita, Kathy, Stan, Bob, Diane, Sandy, Larry, Johnny, Jen, Bryan, Harold, Ginny, Dennis, Denny, Kathy, Machelle, Connie, Teri, Dave, Alma, Norris, Alessandro, Allen, Marc, Sandi, John, David, Donna, Jenny, Hilary, Karen, Lydia, Chuck, Donna, Jaime, Nick, Steve, Tami, Brittany, Connor, Jerry, Lynn.
Find out more about using the EPFX/QXCI/SCIO biofeedback device by contacting Quantum Source 4 Life to find a certified EPFX/QXCI/SCIO Biofeedback Practitioner/Technician/Therapist near you. Get started on your own wellness journey!!
continues his heavy metal/mercury detoxification program (May to date and continuing).
Michael had all mercury and metal dentalwork removed from his mouth and now we are embarking on the very slow but steady process of decontaminating his body systems from the effects of the mercury/metal.
According to my research, a good Heavy Metal/Mercury detox program should:
address water intake! Plan to drink eight 8 oz (64 ounces daily total) glasses of filtered tap water daily.
address the following "downstream" organs/body systems through organ drainage, support, and cleanses--heart, kidneys, gall bladder, lymph system, liver, gastro-intestinal tract (GI), skin, etc.
address dietary changes that are required (high mineral, moderate protein, good fats, foods high in sulfur, foods high in antioxidants, pigmented fruits and vegetables, juicing of mineral rich foods (fruits and vegetables))
include the following herbs/supplements: Chlorella (or like products), Glutathione, garlic (protects blood, stimulates the immune system, supplies sulphur, kills pathogens e.g., fungus/parasites/microbes), Cilantro (deactivates garlic, so, take it 2 hours apart from garlic), Vitamin B's (esp. B6, B9) Vitamin C, Vitamin E (protects blood, cell membranes), Co Enzyme Q10 (CoQ10), Alpha Lipoic Acid (enhances other anti-oxidants, supplies suphur), multi-vitamins, trace mineral complexes, Magnesium, Calcium, Zinc, Selenium, Molybdenum, Chromium, electrolytes, echinaceae, solidago, Hydrochloric Acid (HCl), Essential Fatty Acids (EFA's like Barlean's Cold Pressed Flax Seed Oil, Primrose Oil, Borage), olive leaf, oregano oil, Phytic Acid (IP6), Goldenseal, hormone enhancement and/or replacement (for thyroid, adrenals, pituitary, sex, insulin)
include the following modalities/therapies: EPFX/QXCI/SCIO Biofeedback therapy, Bio-electric Field Enhancement, Far Infrared Sauna (detox spa therapy--multi headed infra-red light), PAPimi, low level laser therapy, Magnatron-magnetic pulsating therapy, colonics/cleanses (flushes of the gall bladder, liver, kidneys), oxygen/ozonation therpy, magnetic clay baths (pulls toxins through the skin), EXERCISE!, hyperbaric oxygen therapy
address chronic unresolved psycho-emotional conflicts.
Learn more about how mercury poisoning from your dental work affects your health and consider removing all heavy metals and mercury from your mouth followed by a detoxification program that will remove the metals/mercury from the rest of your body (as the metals/mercury leached there from your mouth).
Remember that the American Dental Association is the assignee to patents for dental amalgam containing mercury:
US Pat. 4,018,600 Waterstrat April 19, 1977
US Pat. 4,078,921 Waterstrat March 14 1978
There is monetary gain for Dentists to place mercury fillings in your mouth and the mouths of your loved ones.
Citizens of Canada are organizing a class action suit--learn more: "Canadians for Mercury Relief: All That Glitters is not Silver" http://www.cfspages.com/can1.html
Learn more about this lawsuit by reviewing a
Google Search http://www.google.com/search?sourceid=navclient&q=Canada+%22class+action%22+lawsuit+mercury
Here are some internet citations regarding the detoxification of heavy metals--including dental mercury:
Mercola, Joseph, MD. "Mercury Detoxification Protocol" http://www.mercola.com/article/mercury/detox_protocol.htm
Douglass, William Campbell, MD, MS. "Mercury Fillings Are Poisoning You: But There's Hope" http://drcranton.com/mercury/amalgams.htm
"Oral Chelation: Heavy Metal Toxicity",/A> http://www.healingdaily.com/oral-chelation.htm
Heavy Metal Detoxification http://tuberose.com/Metal_Detoxification.html
"Mercury Detox Instructions: And Other Heavy Metals" http://www.nihadc.com/detox_home.pdf
This is such a HUGE area, that I found over 8,000 citations to the detoxification of heavy metals including dental mercury during a Google Search
Do your research and address the problems associated with dental mercury in your mouth and the ones you love.
continues to closely monitor his bi-monthly (every two weeks) blood test results, modifying the supplements that he takes to correct identified "highs" and or "lows" as outlined in Dr. Hulda Clark's work entitled "The Cure For All Advanced Cancers" (April to date and continuing).
I monitor Michael's blood tests on a routine basis. He obtains a blood test about once each month--more often when we can....
I compare the numbers to the "norm" ranges and watch for patterns. Are the liver enzymes on the rise? This is significant for Michael as we were told that his death will likely be caused by liver failure. The liver enzymes will rise, out of control... he will go to sleep, go into a coma and not awaken. The liver enzymes, then are our barometer to his health.
So far, each time we get the blood test results back (you should request a "Chem 24" and Liver function, and Iron panel for best information available) we take it upon ourselves to evaluate what numbers are rising, which are falling--even if they are currently in the "normal" range!!! After this review, I modify Michael's dose of natural/herbal supplements.
We increase/decrease a specific supplement to help raise/lower specific line items on the blood test.
Read Dr. Clark's book to find out more about what supplements help to raise/lower specific items on a blood test.
It is worth noting that no doctor is helping us with this process....they continue to be amazed that Michael is alive--and urge us to keep doing what we are doing. We are obliging them and we continue to do our own research and alternative/complimentary/naturopathic work to "Keep Blair Alive".
[WHEW!]
And Michael Blair is still alive....
Well, it's in the 90's (F) here--gotta get to the bills. Thanks for your continued support, prayers, thoughts, phone calls, e-mails, etc. We appreciate it, more than we can say.
Take time out for yourself!! You deserve it. Be sure to tell the ones that you love, that they are loved.
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Hello! to All! Hope that this finds you and your loved ones well and set for the Holiday Season. We have much to be grateful for--Michael is alive and well and I wanted to give you an update.
EPFX/QXCI/SCIO
Health issues
Pacific Northwest Four Wheel Drive Association (PNW4WDA) news
Vacation and Down-Time for the Health of it!!!
During 2004, Michael has been seen by various health care professionals who all have used the EPFX/QXCI/SCIO for biofeedback stressor balancing, including:
Dr. Debi Drake, MD, CCFP (EM) provided biofeedback assistance to Michael in front of a group of 50 practitioners in Cabos San Lucas at the Quantum Alliance Congress of Masters late June, 2004. The Congress was focused on the use of biofeedback to balance degenerative processes and Michael served as a client--I was at the controls as she demonstrated the protocols. We are grateful for the help she provided to Michael--it was the beginning of many positive changes for him.
Tedford Tidland, (a Regional Director for Quantum Alliance--the organization from which I have taken the majority of my formal EPFX/QXCI/SCIO and biofeedback training) generously spent many hours with Michael in mid-November and demonstrated to
me various protocols which I will continue to use in working with Michael. Tedford is also well versed in the use of Essential Oils and provided us with valuable information on a wide range of topics. Tedford suggested that we arrange an appointment with Dr. Dietrich Klinghardt (Bellevue Washington) for more information about ART, MFT, APN, and the Autonomic Nervous System. We will try to arrange an appointment in the future. Thank you for your help, Tedford!
Dave Cowan, (a Certified Nutritional Consultant, Certified Biofeedback Therapist, EPFX/QXCI Practitioner) is an instructor for Quantum Alliance--in fact he was my instructor for much of Level one training (Victoria, B.C.--July, 2004) and all of Level two and three training (Los Angeles, California, U.S.A.--November, 2004). Dave provided Michael with a biofeedback and energy session while we were in Los Angeles, and we are grateful for his help. Dave's wife Erin provided additional support to Michael with energy work of her own, and we are thankful to her for her assistance.
Dr. Steven Small, of Quantum Health (Marina Del Ray, California, U.S.A.) provided Michael with a biofeedback session (November 19, 2004)and some very pertinent insights on cell level health. He suggested a new supplement protocol (that Michael is now using) that is designed to improve the liver enzyme levels and other aspects reflected by Michael's blood test results. Dr. Small is the doctor to such notable people as Brittany Spears, and Robyn Williams (amongst many others). In his office, he displays various articles, from various magazines, that discussed his work with some famous actors. We are grateful for the oppportunity to have had him work with Michael. Steven suggested that we arrange an appointment with Dr. Dietrich Klinghardt (Bellevue Washington) for more information about ART, MFT, APN, and the Autonomic Nervous System. We will try to arrange an appointment in the future. We obtained many of the products necessary for the new protocol from the Santa Monica Homeopathic Pharmacy as well as from BioMolecular Sciences (Marina Del Ray). We hope to see improvement in blood levels in the ensuing months. Thank your for your help, Dr. Small!
Michael has not had any "Western Medicine medical interventions" (surgery, chemotherapy, radiation, imaging diagnostic stuff, etc.) since the removal of his chemotherapy port in April 2004. He continues with twice-weekly EPFX/QXCI/SCIO biofeedback work that I do for him at home. Michael also continues to take the homeopathic remedies as suggested through our biofeedback work and from the various practitioners we have consulted.
Michael and I continue to monitor his monthly blood tests. In general his test results continue to reflect a rise in the liver enzymes--a situation that is quite troubling. We have been successful in modulating the rise the fall of most blood test values, but the liver enzymes have been particularly difficult to control. Faced with this problem I have continued to research the internet--hoping to find the magic bullet for getting the liver enzyme numbers to level off and preferrably to decline.
Various appointments with the surgeon (Dr. Glen Deyo) between April and November 2004 were set but cancelled due to scheduling issues at his end. We ultimately met up with Glen in early November, 2004. When he walked through the door of the examining room, Michael rose and they shook hands. I gestured to Michael and asked "So, what do you think?", to which Glen responded, "I am stunned". He repeated this several times during our visit. I am not sure what he thought Michael would look like, but he was clearly surprised at how good Michael looked. He asked what we had been doing to keep Michael alive and we, once again, told him about our continued use of the EPFX/QXCI/SCIO biofeedback device. We reminded Glen of his vow to write a paper for submission to medical journals, should Michael survive to August 2004, and that he must have an open mind and investigate the use of the device. Ultimately, he indicated that he would set a time for us to demonstrate the machine to him and that he may even purchase one. I continue to use the information provided in the works of Dr. Hulda Regher Clark and the EPFX/QXCI/SCIO to guide us in deciding which supplements Michael should take to modulate the rise and fall of various blood test values.
August, 2004. Michael and I attended the annual Pacific Northwest Four Wheel Drive Association (PNW4WDA) "Summer Convention" Event held in Ethel Washington. The event was well attended, the weather was great and there were many fund-raisers held by various clubs to benefit fellow jeep racer and friend--Connie McCaslin. Michael had an opportunity to speak to the group during the "trophies" event and thanked everyone for their personal support of him and asked for their support for Connie. We joined the "Tacoma Webfooters" jeep club in May 2004. Michael became president and I became Secretary in August, 2004.
September, 2004. The annual "Nitty Gritty" sponsored Labor Day event held near Richland was well attended and it was great to race there again. The Tacoma Webfooters sponsored a fund raiser in our camping area--proceeds were donated to "For Connie's Sake" in support of Connie McCaslin. This race marks the end of yet another wonderful racing season--gives us all winter to get the jeep put back together to race in the spring, 2005.
December, 2004. Over 250 friends, family and fellow jeep racers joined together for a fund raiser in support of Connie McCaslin. The event, sponsored by the Martin Family (Machelle, Kathy, Dennis, Adrienne, Naomi, Denny) by McCaslin family members and Tacoma Webfooters members was a huge success. Machelle Martin and Angela Turcotte (McCaslin) did an incredible job of pulling together the myriad of details required to pull off an event of this size. The Lake Lawrence Lodge was beautifully decorated with seasonal red and white colors. The food (donated and prepared by Chef Diana Prine, along with members of the Tacoma Webfooters) was superb! Both a silent and live auction (with Don Williams as auctioneer) were held and attendees had a great time bidding on various items. Angie Marek, and Debbie Caudill (two incredible women) staffed the registration/pay area. An open bar (wine and beer) was available (staffed by club members Tiffany Morris, Adrienne and Naomi Martin). A shuttle service (between the camping area and the lodge) was staffed by Dennis Martin, Michael Blair and Bill Pelkey. The proceeds from the event totaled nearly $10,000 and will be deposited into the "For Connie's Sake" bank account held at KeyBank.
In late September, daughter Hilary Seling generously gave us a vacation in her neck of the woods! After graduating from high school (Lakes High School, Clover Park School District, Lakewood, Washington State), Hilary attended a private engineering school in Worcester Massachussetts (Worcerster Polytechnical Institute--WPI) and she subsequently became employed by Accenture. She lives in Boston, but her current project is in North Carolina, so she commutes--weekly!!! She invited us to Boston and then New York, and we had a ball!! We did sight-seeing in both cities and while in New York, went to see the play "The Producers". She set us up right in downtown Times Square in New York--at the Marriott Marquis. It was a phenomonal week and we are grateful to her for the gift. See the pictures of our trip to Boston and New York.
Daughter Allison Evaro came to visit us in late October. She brought baby Olivia Rae, who is now (at this writing) nearly eight months old. Of course, I cried off and on. It was overwhelming to see Michael with his grand-daughter. It had not seemed likely (if listening to medical odds) that Michael would survive to see his daughter give birth to his grand-daughter, and seeing them together in the same room, well, it just got to me. We are grateful that Michael has survived and that has had the opportunity to come to know Olive Rae Evaro. See photos.
Michael and I travelled to Seaside Oregon in late October to celebrate our 16th anniversary. We had bought into WorldMark, Trendwest many years ago--and decided to stay at the 2-year-old resort at Seaside. It was great to walk the beach, eat at the Pig-N-Pancake (a local site) and basically unwind for a weekend. We were stunned to learn that Fredrich Becker, a long time employee of WorldMark, Trendwest (the manager of the WorldMark Trendwest resort in Fiji) was now the manager in Seaside Oregon. We reconnected with Frederich and learned that he will soon be managing the newly remodeled "Camlin" property in Seattle. The remodeled resort in Seattle will be opening at the end of December. See the pictures of our trip to Seaside Oregon.
Level two and Level three training (provided by Quantum Alliance) for the EPFX/QXCI/SCIO was held in Los Angeles, California in mid-November, 2004. When training was over, we visited with friends Jim & Courtney at their home in Altadena. It was a great weekend, and it was great to reconnect with Jim and Courtney. Jim graduated from High School with Michael and now works as a Vice President of programming for Comedy Central. We had dinner at an Italian Restaurant in downtown Pasadena and pretty much hung out, enjoyed great company and a relaxing weekend. Thanks!! Jim & Courtney. See the pictures of Jim & Courtney's place.
It was great to reconnect with various members of the Washington High School graduating class of 1971. We had a festive holiday get-together at the home of Pam Topping. Santa paid a visit and everyone had an opportunity to catch up on the events of the year. See photos
Whew!! What a year!! Well, I think that about wraps it up for this Health update!! Michael and I are certainly thankful and grateful for all the good that has come to us this year, thanks for being a part of it. We wish you and yours a wonderful and healthful Holiday Season and will keep you posted on Michael's continuing health saga.
Be sure that your loved ones know that they are loved.
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Hello! to All! Hope that this finds you and your loved ones well and enjoying 2005. We have much to be grateful for--Michael is alive and well and I wanted to give you an update.
Health issues
Vacation and Down-Time for the Health of it!!!
Michael continues with twice weekly biofeedback sessions and with monthly blood tests. February 9, 2005 will mark the one-year anniversary that Michael and I purchased our own biofeedback device.
We had an opportunity to see Dr. Dietrich Klinghardt (Bellevue, Washington) for three appointments in late January. I will provide more details about this remarkable doctor and his work with Michael. I will also share information about the APN, ART, MFT work that Dr. Klinghardt has done. Watch for that information.
Michael and I and Chuck Wallace got our dental work completed in Mexico in late January early February. Michael needed a replacement crown, I needed a permanent one placed and Chuck had bridge work to be completed. I had the opportunity to meet many new people, while hanging around the waiting room at the dental office. It was a hub bub of many stories of healing, alternative methods of surviving medical maladies, etc. I provided biofeedback work for a fellow who was there for dental work, ran the dental program and his dentist came out and sat down next to me. The report from the biofeedback machine matched identically with the panoramic x-ray down by the dentist! The machine indicated the tie between the gentlemans nine root canals, dental mercury amalgams and his heart problems. He was grateful and stunned at the same time.
I am working on an arrangement to provide biofeedback services in the Mexico Dental Clinic one week each month, beginning in March 2005. Details will provided when available.
My dad continues to have nerve damage issues relating to a serious previous fall. He visited a neurologist who tested and then confirmed for him what the biofeedback device had been telling him about his various medical issues. His prior skepticism in the biofeedback device has to some degree been replaced with guarded approval. Who knows, he may one day join the ranks of the believers [smile]!!
Way back in Ocotber, 2003, Michael's youngest brother (Ken) gave me a coupon for a cruise. It was a gift for keeping his brother alive. The expiration date was February, 2005--and the cruise had to be completed by that date. So, Michael and I made the arrangements and went on a Western Carribean cruise in January 2005. The timing was perfect to celebrate Michael's 53 birthday at sea! We had a wonderful time and there are many stories to tell and pictures to share. I will provide more details later.
While in Mexico for dental work, Michael and I had the opportunity to visit with my parents in the Otay Valley, California. We spent a leisurely day with them, enjoying a hummingbird feeding frenzy (southern California style!) and watching two rather large rattlesnakes doing a ritualistic mating/twining thing. The two were on the other side of a creekbed and about a dozen humans watched the pair as they wresteled with each other on the opposite bank. Incredible! Footage was captured on video and digital cameras. As I get the pictures, I will post them here.
Hello to All! Hope that you enjoyed the Easter weekend with loved ones, family, friends.
Our hummingbirds are back, we have not yet put out feeders. It is one more thing to take on at a time when we have so much going on!! We might not get them up this year....
We want to provide you an update on Michael's health situation. Michael continues his work with Dr. Dietrich Klinghardt, M.D., Ph.D. in Bellevue, Washington State. While the mercury metal /amalgam fillings were removed from Michael's mouth (April 2004) we had to finally begin addressing the detoxification of mercury (and other heavy metals) from deep in tissues and organs throughout the rest of his body which resulted from a lifetime exposure to mercury fillings and mercury laced vaccines, work related toxic solvents, etc. Dr. Klinghardt came highly recommended, from many quarters, and we are grateful that we found out about him. And so, Michael began the detox process. Michael went in for eight weekly treatments designed to mobilize and detox the mercury, other heavy metals and toxic solvents. Overall, this entire process was designed to address liver function support as well as fatique and weight loss. Michael is down to 149 pounds. It was suggested that Michael have a Detox Genomic profile done to discover why the liver was not responding appropriately to all the detoxing that we have been doing right along. The news that we got back was rather disheartening.
There are three specific genetic defects affecting Michael's health. One specific gene was missing entirely--the gene was not passed on to him from either parent. In the case of the two others, both genes from both parents were defective. The bottom line: Michael's liver is incapable of detoxifying certain things, including: tobacco smoke, exhaust fumes, solvents, herbicides, fungicides, lipid peroxides, and heavy metals (mercury, cadmium, lead). Overall the gene defects affect the liver/gut, liver/kidney, brain/skin, mitochondria. The gene defects affect the body's ability to protect cells from increased oxidative stress and free radical damage to cell structures like membranes, mitochondria, DNA and proteins. It affects estrogen conversion that can lead to estrogen-sensitive carcinogenicity, detoxifying aromatic hydrocarbons (like car exhaust, cigarette smoke and charbroiled foods). A person with this combined defect should not eat fried foods and rarely eat red meat.
CYP1A1
CYP1B1
CYP2A6
CYP2C9
CYP2C19
CYP2D6
CYP2E1
CYP3A4
So, over all of his life, Michael had numerous vaccines, mercury fillings, and has worked (since his teens) in an occupation filled with toxins that his body can not detoxify through the liver. Disheartening news, but an explanation about Michael's liver and its production of many tumors.
As a result of this information, Michael will add a new regimen -- glutathione inhalents -- in an attempt to support the liver. We had noticed that the liver is now clearly, visibily "hanging down" from under the rib cage on the right side--it has enlarged and this new part is very hard. Apparently, the liver made new liver--trying to compensate for the part that is tumorous.
I took the last of my retirement money out to pay expenses associated with Michael's care. I continue to work full time as a Certified Biofeedback Technician and Michael continues to work approximately six hours each day. In light of his inability to detoxify any toxins that he is around (at work) everyday, it is a shame that he must work at all. Without his employment, we would not have any health insurance coverage as my current employment does not offer benefits. We checked in to buying personal insurance--$800 per month for both of us. Because Michael's care (past and current) now costs approximately $3,000 each month, we will identify a real estate agent and begin the process of selling the house/property/contents. The equity garnered from the sale will be used to continue Michael's care. At this point, we will move into the motor home and someone will certainly let us park in their yard.
I never dreamed that it would really come to this..... It has become an even greater challenge to "Keep Blair Alive"
In light of the information in the genetic report, we have decided to check Michael in to a "live-in" cancer clinic. His stay at the clinic starts with a 5-day Complete Health Assessment (CHA) (which I will attend) and then Michael will stay for an additional period of time. We have paid for the CHA stay ($5,200) but request your help with the cost associated with the additional treatment period. We are trying to raise a total of $30,000 to provide this care for Michael.
We have begun the process of selling our home/property/contents but the money might not be available for as much as 90 days. Many of Michael's High School classmates will participate in "work parties" (April/May 2005) to get the buildings and grounds preped for the sale. If you can help, contact Dave Rink.
On top of the Live-in Cancer Clinic, costs associated with Michael's care is approximately $3,000 each month (for on-going care and past care). The majority of on-going care is not covered by insurance.
We can't thank you enough for considering making a Gift Donation. We continue to gratefully accept donations to the "Donation Account For Michael Blair" held at KeyBank. Donations may be made at any KeyBank, nationwide. If you would like to make a "wire transfer" of funds, please contact KeyBank Vice President Debbie Fletcher Caudill in Yelm Washington at: 360-458-2090 and she will help you with this process.
We wish to express our heartfelt gratitude to all of you who have made a gift donation to help Keep Blair Alive.
If you are unable to make a contribution, please make a phone call to KOMO News 4 (Seattle, Washington) People Helpers Line at 206-441-4357 then press 2. Leave a message and ask that they share the story of Michael Blair, Keep Blair Alive. UPDATE: I understand that this phone line is no longer active, so please access the KOMO News 4 People Helper website and follow the prompts or e-mail them at: peoplehelper@komo4news.com to ask for their support in publicizing our case.
I don't want Michael's care to end simply because we are out of money. Thank you for your help.
That's it for now...we will keep you informed as things develope.
Hello to All!! Hope this finds you and yours well and in good health. Did you remember to "Spring Forward" and set your clocks ahead by one hour (for those who live in an area where this practice is followed....)?
We would like to provide an update on Michael's health situation.
In light of recent information relating to Michael's genetic mapping, and its relationship to his liver cancer, we have decided to check Michael in to a "live-in" cancer clinic. His stay at the clinic starts with a 5-day Complete Health Assessment (CHA) (which I will attend) and then Michael will stay for an additional period of time. We have paid for the CHA stay ($5,200) but request your help with the cost associated with the additional treatment period. We are trying to raise a total of $30,000 to provide this care for Michael.
We have begun the process of selling our home/property/contents but the money might not be available for as much as 90 days. Many of Michael's High School classmates will participate in "work parties" (April/May 2005) to get the buildings and grounds preped for the sale. If you can help, contact Dave Rink.
Michael's recent blood test results indicate that severe liver trauma continues to threaten his life. He has beaten all odds in his three-year battle with this disease--not one doctor that we have consulted thought that Michael could survive to this point. We continue to fight until Michael tells me to quit!
We leave early this week for the cancer clinic. I will stay for the assessment portion and then Michael will stay until he is well or the money runs out, whichever occurs first. I have begun the processs of selling our property/house/contents and will continue that until that project is complete. I continue to work full-time as a Certified Biofeedback Therapist (I just received my Therapist status--based on education/training/work experience) but Michael (for the time being) will focus strictly on staying alive. Many generous family members and friends have helped to donate to Michael's bank account to help pay for the costs associated with the clinic. Thanks for your continued support--we will keep you posted.
Hello to All! Michael has returned home from his stay at Sanoviv (meaning "healthy life"). While we had initially planned for Michael to be at Sanoviv for the month of April, we were unable to secure enough money to make this possible. Michael's stay at Sanoviv started on April 5th with Sanoviv's 5-day/4-night Complete Health Assessment (CHA) (which I attended) and then Michael stayed through Saturday, April 16th.
Find the many citations about Sanoviv Google Search
Dr. Myron Wentz, Sanoviv's creator, scientist, entrepenuer, microbiologist, immunology specialist, infectious disease expert, FDA approved viral disease diagnostician (especially Epstein-Barr virus assay developer), creator of USANA (nutritional products), founder of Gull Laboratories. USANA Health Sciences. http://www.usana.com/en/company/story/story_4.shtml
Sanoviv, a health retreat located on the coast of the beautiful Baja California-Rosarito Mexico. The Cancer Cure Foundation. http://www.cancure.org/sanoviv.htm
Sanoviv Medical Institute. Baja Relocation. http://www.baja-relocation.com/health
Sanoviv Health Retreat, Ann Marie Donaca--a patient's testimonial. Ground Score, Summer Issue 2001. http://www.rawfoodinfo.com/articles/art_anndonaca.html
Sanoviv, "the best treatment facility for the 21st century". One Heart Resource Center. http://www.1heart.com/mexico.html
Sanoviv, a Mexico Cancer Clinic. Alkalize For Health--Ralph W. Moss, Ph.D. Weekly Cancer Decisions. http://www.alkalizeforhealth.net/Ltijuanacancerclinics.htm
Sanoviv is located on a high bank, right on Rosarito Beach between Rosarito and Ensenada, one hour south of San Diego. Myron Wentz, Sanoviv Founder, acquired the former Levi Straus property and mansion and built the Sanoviv facilty adjacent to the mansion. The immaculate, serene facilities, "cutting-edge" "state-of-the-art" diagnostic and treatment therapies and caring staff make this Medical Health Facility an excellent setting for you to improve your wellness. Everything about the facility was well thought out, from the layout, color schemes and piped music. We were told that every bit of the building materials were evaluated to ensure that they would not outgas, (fabrics, woods, tiles, paints, glues, grout, etc.) Guest/patient rooms all face the ocean--there are no drapes, so you get up and go down with the sun. The private guest/patient rooms are luxurious, beautiful and conveniently laid out.
You should know that all services/treatment plans are payable in advance, so be clear about your treatment plan and ensure that you have monies available. Sanoviv accepts payment by major credit cards, cashier's checks, wire transfers, etc. Speak to the Sanoviv Reservations department and to the Accounting Department at the toll free number provided elsewhere on this site and the professional, friendly staff members will gladly assist you.
Upon arrival, you will don the cotton clothing and shoes that are provided. A schedule of your daily appointments will be prepared by your assigned coordinator who remains in constant communication with your assigned team of doctors/dentists/therapists. Many cancers as well as other degenerative diseases (Parkinson's, MS etc.) are treated there. While we were there, many different guests/patients had various health issues that were addressed--including those who were there for advanced cancer (stomach, duodenum, brain, sarcoma). Others were there for various detoxifcation programs and weight loss. We found (with rare exceptions) the staff to be caring, professional, empathic, nurturing individuals who are clearly dedicated to helping others achieve improved health and wellness through providing well planned therapies and educational seminars about many wellness related topics. From the groundskeepers, room attendents, administrative staff (registration, accounting, etc.), meal preparation, shuttle drivers to every member of the medical team (including doctors, dentists, psychologists, therapists, nurses)--every employee we asked said that they loved working there and this attitude was readily transmitted to the guests/patients and their companions. The belief at Sanoviv is that the body will heal itself when it is detoxified (pathogens, heavy metals, toxins) and is provided proper nutrition and supplementation--and the programs individually developed for each guest/patient is aimed at this mission.
The Complete Health Assessment program and subsequent treatment program for Michael included laboratory tests, patient history, Electrocardiogram, Spirometry, Thorax X-ray, Abdominal-Pelvic Ultrasound, Dark Field Microscopy (which revealed poor mileu, lymphatic clogging, GI tract malignancy, parasitic condition), Psychological consult, Vega Test (which revealed hormone deficiency, strong tendency for malignancy, chemicals and heavy metals, mercury), Biologic Terrain Analysis (which revealed acidic saliva, kidney blockage, dehydration, high levels of minerals, lymphatic clogging), Rife frequency therapy, Scenar biofeedback, Thermography, Dental Exam, Bone density screening, Hyperbaric Chamber, Daily Intravenous treatments, Hyperthermia, Swedish Massage, Clay Body Wrap, Yoga, meditation, and various seminars about food preparation/nutrition, and well-being. Michael underwent a detoxifcation program designed for him and a complete dietary change--switching to a highly raw/vegetarian diet including juicing. It is noted that while Sanoviv does posess three QXCI/EPFX/SCIO devices, none were used for Michael. We always take our own device and I provided biofeedback sessions to Michael while we were there. We were told that according to the X-ray taken at Sanoviv (as compared to the results from the 3-D reconstruction CT Scan performed April 2004) the lung tumor in the lower left lobe of the lung is now gone--the tumor in the upper right lobe of the the right lung is greatly reduced in size. We have done many things to Michael since one year ago (biofeedback twice each week, removal of mercury and root canals, detoxification of heavy metals, Hulda Clark's 21 day cancer program, Dr. Dietrich Klinghardt's Autonomic Nervous System (ANS) work, diet modificaiton, supplements, etc.) obviously it is all collectively working.
We had numerous consultations with Michael's assigned doctor (Dr. Carlos Bautista) who recommended that Michael have surgery on Saturday, April 8th to perform a liver biopsy. Dr. Bautista consulted with Dr. Glenn Deyo (Michael's U.S.A. surgeon) and the surgery was scheduled. An internist, Dr. Sballa (sp?) actually performed the liver biopsy surgery on Saturday in the surgery suite on-site at Sanoviv. Michael came through the surgery just great and spent much of Saturday, Sunday and Monday recovering. The liver biopsy material was sent to a facility where a specific vaccine will be created for Michael. The idea is that the vaccine will be produced from Michael's cancer tumor. The auto antibodies (abnormal cells that are attacking Michael's colon, liver, lung, small intestines) will be modified and turned into proteins (antigens) that he will ingest as sublingual (under-the-tongue) drops. The vaccine will make the auto antibodies decrease or disappear within a few months. Once the vaccine is developed, Michael will take it for about 5 weeks. It is noted that all vaccines in the U.S.A. are prepared/packed with Thimerosol--Mercury Salts--which is being linked to the high incidence rate of childhood autism. The vaccine being prepared for Michael will not be laced with Thimerosol--Mercury salts. It would seem counterproductive to have spent three years and $177,000 on getting Mercury and other heavy metals/toxins out of Michael only to put mercury back in (by taking mercury laced vaccines). I understand that this type of treatment is not currently available in the United States. Apparently, there are three U.S.A. facilites that are doing this kind of work on an experimental basis only. One must find out about the studies, apply, be accepted, wait on the list until allowed to participate. It is being done now in Mexico, and the three persons we met who had undergone the treatments looked great.
We are grateful for the donations that we received from family members, friends and other generous donors. When Dr. Bautista originally told us (Friday) about the intended liver biopsy surgery, we simply did not have enough money to allow the procedure to be performed--we were short several thousand dollars. We told him that we were going to have to go home to the U.S.A. and return when we had the money to do the procedure. With the colon and liver starting to "shut-down" it was deemed imperative that the procedure be performed. Daughter Hilary Seling graciously donated the needed amount and the surgery was scheduled. We will be forever grateful to all of you for your donations to "Keep Blair Alive", thanks.
I did an internet search about Sanoviv and here are some descriptions used by others to describe Sanoviv Medical Health Institute/Sanoviv Health Retreat Spa Resort:
"...naturopathic clinics treating cancer and degenerative diseases..." "...fully accredited, leading edge medical facility..." "...holistic hospital..." "...health resort.." "...alternative hospital and medical research hospital..." "...alternative health care therapies..." "...alternative medical physicians..." "...state-of-the-art healing center..." "...health spa..." "...healthy aging and healing lifestyles..." "...ideal environment for total body cleansing..." "...healthy visitors repeatedly come back to Sanoviv..." "...first-class spa and medical facility..." "...USANA's upscale luxory resort and medical center..." "...for anyone who wants to enjoy better health and a more vital life..." "...arguably the most unique and effective alternative medical facility..." "...the only hospital of its kind in the world..." "...the only health and healing center in the western hesmisphere..." "...offers safe, effective, detoxification and cleansing in a nuturing environment..." "...comprehensive health retreat, offering advanced therapies in an amazing location..." "...world-class amenities and professional medical staff..." "...non-toxic healing and caring facility..." "...promotes a lifestyle of beauty and fitness..." "...Sanoviv Health Retreat offers guests/clients a restful a restful rejuvenation..." "...healing retreat focusing on nutrition, spa, facial and massage treatments, fitness training and stress reduction..." "...premier health spa resort...".
Therapies and programs offered by Sanoviv include:
Cancer therapies; Degenerative disease programs/therapies; Treatments for: Multiple Sclerosis (MS), Parkinson's, Alzheimer's, Metal Detoxification, Obesity/Weight loss, Diabetes, Chronic Fatigue Syndrome (CFS), Migraines, Chronic Diseases, Arthritis, Pain relief, Fibromyalgia, Mercury removal from the mouth and mercury detoxification from the body organs and tissues; Gastric Lap Band procedure; Raw/Live/Vegetarian Foods, amongst others.
In other news,.....
We are bereft that we have lost both "Willy" (our black lab--age 13) and "Ricoh" (our cat--age 12). Willy succombed to a form of cervical cancer (April 1st) and Ricoh had a neoplastic tumor in the brain (April 16). The odds that three members of my immediate "family" simultaneously battled forms of cancer are astronomical. Though beloved Willy and Ricoh are gone, they will never be forgotten.
Today we have meet with Oncologist Dr. Lorrin Yee for Michael's standard quarterly checkup and bloodtest. On Thursday, we meet with Dr. Glen Deyo. We will be able to share the Sanoviv experience with both of them. We are looking forward to getting the blood test results back!! The "before" and "after" blood tests taken at Sanoviv indicated positive change for Michael from the treatment that he received there. Blood tests results from today will be from the same lab that has performed all the previous ones. It will be telling.... We will keep you posted.
Thanks for your continued support, we are grateful for it. Take time out for yourself--you deserve it! and be sure to let your loved ones know that they are loved.
Hello to all, hope that you and your loved ones are healthy and set to celebrate the 4th of July! As usual for the 4th weekend, it is overcast and threatening to rain here in Western Washington.
The weather wouldn't matter to us, we aren't planning to go anywhere. We are pretty much house bound as Michael's health has deteriorated at an alarming rate.
Over the last few weeks Michael's has been hospitalized (in the ER) twice for extreme levels of body fluid retention. Pitting edema, level three, meaning you put pressure on the skin anywhere from the abdomen down and it "pits" and stays that way for quite some time before it finally goes away.
The doctor in the ER told us that this is a normal progression with those diagnosed with cancer. He "reminded" us that Michael has colorectal cancer, lung cancer (the tumors are now gone), liver cancer and "numerous nodules" in the small bowel mesentery. He wrote all of this down in 45 point type at the top of Michael's admittance paperwork--to make sure we understand Michael's situation.
When we first took Michael in to St. Clare Hospital ER to find out about this condition, Michael refused to have a foley catheter put in to drain the bladder. Michael was in the ER for a second time on Friday night (June 24th, 2005) and had the procedure performed then.
Michael has begun doing a series of daily colon enemas in an attempt to remove the impacted material from his bowel. Because the colon tumor/blockage is located lower down, near the rectal area, we have our work ahead of us in this task. After our doctor appointment on Wednesday, I visited with a good friend who is a great craftsman. Thanks to Chuck Wallace and his co-worker/wife Donna Wallace, within 24 hours we had a colon enema bench installed in the bathroom to facilitate Michael's daily colon enemas. After just one day, changes were evident. Michael's dad even remarked about the noticeable change. We will continue with this process until the impaction is gone.
Our friends have accomplished a lot in working on getting the property/house/contents ready for sale--the painting of the house and garage is nearly complete. We are grateful for the support of our friends in accomplishing all of this on our behalf. Thanks, gratitude and appreciation go to Dave Rink, Donna Rink, Mike Rink, Mark Ballman, Gail Burgum, Brian Guame, Pam Topping, Mike Byer, Ron Kerns, Maurie Kerns, Dana, Bob Johnson, Ken Blair, Jim Blair, Ron Blair for their help and support. We hope to list the property for sale within a few weeks.
Various groups of friends will sponsor two fund raising events on Michael's behalf. The first one, scheduled for Monday July 11th, 2005 at Sprinker Recreation Center in Spanaway (Tacoma) Washington. Please see Event Details. The second will be an estate sale at our home in Graham (July 23rd, 24th).
That about wraps up this health update. Enjoy the July 4th holiday and ensure that your loved ones know that they are loved.
Hello to All! Hope your 4th of July activities will provide a day of celebration and Joy for you and your family!
Michael continues to experience a swollen hard abdominal area, while the swelling in the lower extremities has diminished somewhat. He is in pain much of the time, which we control to some extent with medication prescribed by the emergency room physician.
I have had an opportunity to do a bit of research about the current health situation facing Michael and thought that I would share it with you.
Cancer Source RN.comFluid Imbalances: Focus on Ascites and Effusions
"Malignant peritoneal effusions, or ascites, are usually associated with advanced disease and a poor prognosis; they have a devastating effect on individuals' ability to function and on their quality of life. The accumulation of fluid in the abdomen causes problems with gastrointestinal functioning, nutrition, ambulation, breathing, and sleeping, as well as psychosocial distress, all of which contribute to a decreased sense of well-being and a decreased quality of life. Individuals with ascites present a challenge to clinicians because the only way to completely eliminate the fluid accumulation is to eliminate the cancer, and for most patients this is not a realistic option. Treatment efforts therefore often focus on symptom control and supportive measures rather than on definitive therapies."
Read the entire article, it is well written and describes to a "T" what Michael is going through.
Just a quikie!
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